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Living Well With A Hidden Disability
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Book Synopsis Living Well with a Hidden Disability by : Stacy Taylor
Download or read book Living Well with a Hidden Disability written by Stacy Taylor and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who live with a hidden disability, such as chronic pain, depression, or a range of other conditions often misunderstood, downplayed, or even dismissed by others, this book offers practical suggestions for surviving rough times, coping with negative reactions, and dealing with employment issues, as well as strategies to manage pain, find a helpful therapist, rebuild self-esteem, and strengthen the body, mind, and soul.
Book Synopsis But You Look Good by : Wayne Connell
Download or read book But You Look Good written by Wayne Connell and published by Invisible Disabilities Association. This book was released on 2014-09-14 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!
Book Synopsis Easy to Love But Hard to Live with by : Tricia Bliven-Chasinoff
Download or read book Easy to Love But Hard to Live with written by Tricia Bliven-Chasinoff and published by . This book was released on 2014-10-10 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains 35 powerful essays from adults with autism, mental illnesses, fetal alchol spectrum disorders, OCD, ADHD, and other "invisible special needs" and those who love them. These poignant, funny, heartbreaking and honest stories let mothers, fathers, brothers, sisters, lovers, husbands, wives, children and individuals with neurobehavioral disabilities themselves know that they are not alone, and that they somehow stop being important to the world when they reach adulthood. Finding that common powerful bond in a world of judgement and cruelty from those who don't understand, magically transforms the journey and makes it easier to cope. Instead of putting on appearances for others, adults with challenges and their loved ones can choose to connect with who they really are and accept their lives. "Easy To Love But Hard To Live With" is filled with poignant stories that inspire and empower. A great read for those living with a misunderstood partner, sibling, parent, child or other loved one."
Book Synopsis Take Up Thy Bed and Walk by : Lois Keith
Download or read book Take Up Thy Bed and Walk written by Lois Keith and published by Taylor & Francis. This book was released on 2001 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heidi, The Secret Garden, and Pollyanna are all classic "girls' books, " featuring a miracle cure of an invalid character who literally gets up and walks away from illness or paralysis. Such stories were common in Victorian novels and they implicitly conveyed the idea that disability and physical suffering were punishment for wrongdoing: unruly girls could not enter womanhood unless they were tamed, and an accident was the perfect plot device for this transformation. Other characters, like Helen Burns in Jane Eyre or Beth in Little Women, were just too good to live, and died so that another character could be redeemed by their example. Lois Keith points out in this study that the temptation to either cure or kill off disabled characters has surprising tenacity. The widespread belief that a disabled life isn't a full life and that patients can cure themselves through force of will endures to the present day. In Take Up Thy Bed & Walk, Lois Keith brings her lively and observant eye to the classic books of childhood from Jane Eyre, Heidi, and Pollyanna, to modern American classics such as Laura Ingalls Wilder's Little House on the Prairie and Judy Blume's Deenie. Keith explores the recurring images of impairment and ill health in literature and asks the reader to reconsider the messages they send to a devoted young audience. This book is also a testament to the singular passion with which these books are read by younger readers and reminds us of the intensity of our own reading experience as children.
Book Synopsis Talking Splat: Communicating about Our Hidden Disabilities by : Christina Irene
Download or read book Talking Splat: Communicating about Our Hidden Disabilities written by Christina Irene and published by Independently Published. This book was released on 2019-02-26 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: Talking Splat: Communicating About Our Hidden Disabilities is for people with chronic illnesses, mental health diagnoses, and other invisible struggles. Our conditions are often a "moving target," meaning we never know how we're going to feel from one day to the next. The one certainty is that every day, we feel like we've been run over by something. Splat is an innovative way to communicate what that "something" is while also managing others' expectations, alleviating feelings of failure and guilt, assuring better self-care, and enabling us to establish actual routines ... at last! Written by a professional comedian and disabilities awareness trainer who lives with osteoarthritis and fibromyalgia, Talking Splat is a fast, fun, inspiring read that, if you let it, will make your life worlds better and give you your own way to make the world better for us all.
Book Synopsis Living Well at Others' Expense by : Stephan Lessenich
Download or read book Living Well at Others' Expense written by Stephan Lessenich and published by John Wiley & Sons. This book was released on 2019-04-15 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the heart of developed societies lies an insatiable drive for wealth and prosperity. Yet in a world ruled by free-market economics, there are always winners and losers. The benefits enjoyed by the privileged few come at the expense of the many. In this important new book, Stephan Lessenich shows how our wealth and affluence are built overwhelmingly at the expense of those in less-developed countries and regions of the world. His theory of ‘externalization’ demonstrates how the negative consequences of our lifestyles are directly transferred onto the world’s poorest. From the destruction of habitats caused by the massive increase in demand for soy and palm oil to the catastrophic impact of mining, Lessenich shows how the Global South has borne the brunt of our success. Yet, as we see from the mass movements of people across the world, we can no longer ignore the environmental and social toll of our prosperity. Lessenich’s highly original account of the structure and dynamics of global inequality highlights the devastating consequences of the affluent lifestyles of the West and reminds us of our far-reaching political responsibilities in an increasingly interconnected world.
Book Synopsis Empowering Students with Hidden Disabilities by : Margo Izzo
Download or read book Empowering Students with Hidden Disabilities written by Margo Izzo and published by Brookes Publishing Company. This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dare to Dream discusses critical topics for young people with hidden disabilties, such as self-advocating, developing positive relationships with mentors, planning for college, successful working life, interpersonal skills, and satisfying relationships.
Book Synopsis Surviving and Thriving with an Invisible Chronic Illness by : Ilana Jacqueline
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Book Synopsis Disability Visibility by : Alice Wong
Download or read book Disability Visibility written by Alice Wong and published by Vintage. This book was released on 2020-06-30 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Book Synopsis Accessible America by : Bess Williamson
Download or read book Accessible America written by Bess Williamson and published by NYU Press. This book was released on 2020-05-01 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: A history of design that is often overlooked—until we need it Have you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you’ve benefited from accessible design—design for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life. In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they never had before. The US became the first country to enact federal accessibility laws, beginning with the Architectural Barriers Act in 1968 and continuing through the landmark Americans with Disabilities Act in 1990, bringing about a wholesale rethinking of our built environment. This progression wasn’t straightforward or easy. Early legislation and design efforts were often haphazard or poorly implemented, with decidedly mixed results. Political resistance to accommodating the needs of people with disabilities was strong; so, too, was resistance among architectural and industrial designers, for whom accessible design wasn’t “real” design. Bess Williamson provides an extraordinary look at everyday design, marrying accessibility with aesthetic, to provide an insight into a world in which we are all active participants, but often passive onlookers. Richly detailed, with stories of politics and innovation, Williamson’s Accessible America takes us through this important history, showing how American ideas of individualism and rights came to shape the material world, often with unexpected consequences.
Download or read book Enabling Acts written by Lennard J. Davis and published by Beacon Press. This book was released on 2016-06-07 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first major behind-the-scenes account of the history, passage, and impact of the Americans with Disabilities Act (ADA)—the landmark moment for disability rights The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known. In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it’s filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic “Capitol Crawl” or an event when students stormed Gallaudet University demanding a “Deaf President Now!” From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. “You want to fight?” an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill’s primary sponsor. There’s Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing 50 states, and people like Patrisha Wright, also known as “The General,” Arlene Myerson or “the brains,” “architect” Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC.
Download or read book Can't Sit written by Rick Lunkenheimer and published by . This book was released on 2018-01-04 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memoir of how a the inability to sit for long periods of time has affected my life.
Book Synopsis Good Kings Bad Kings by : Susan Nussbaum
Download or read book Good Kings Bad Kings written by Susan Nussbaum and published by Algonquin Books. This book was released on 2013-11-12 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bellwether Award winner Susan Nussbaum’s powerful novel invites us into the lives of a group of typical teenagers—alienated, funny, yearning for autonomy—except that they live in an institution for juveniles with disabilities. This unfamiliar, isolated landscape is much the same as the world outside: friendships are forged, trust is built, love affairs are kindled, and rules are broken. But those who call it home have little or no control over their fate. Good Kings Bad Kings challenges our definitions of what it means to be disabled in a story told with remarkable authenticity and in voices that resound with humor and spirit.
Book Synopsis Living Well, Spending Less by : Ruth Soukup
Download or read book Living Well, Spending Less written by Ruth Soukup and published by HarperChristian + ORM. This book was released on 2014-12-30 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: “If you struggle to simplify your life and wish you could savor the here and now, this book is a must-read.” —Crystal Paine, founder of MoneySavingMom.com and New York Times–bestselling author Have you ever felt that your life—and budget—is spiraling out of control? Do you sometimes wish you could pull yourself together but wonder exactly how to manage all the scattered pieces of a chaotic life? Is it possible to find balance? In a word, yes. Ruth Soukup knows firsthand how stressful an unorganized life and budget can be. Through personal stories, biblical truth, and practical action plans, she will inspire you to make real and lasting changes to your personal goals, home, and finances. With honesty and the wisdom of someone who has been there, Ruth will help you: Discover your “sweet spot” —that place where your talents and abilities intersect. Take back your time and schedule by making simple shifts in your daily habits. Reduce stress in your home and family by clearing out the clutter. Stop busting your budget and learn to cut your grocery bill in half. This book provides real and practical solutions from someone who has been there. Ruth doesn’t just offer advice, she walks it with you, and shares with brutal honesty her own mistakes, failures, and shortcomings. It is encouraging, motivating, and life-changing. “An inspiring book full of step-by-step instructions and spiritual wisdom. I love how Ruth is transparent about her mistakes as she leads us to reevaluate our priorities. This book is a great biblical guide to living well and finding joy!” —Courtney Joseph, founder of Women Living Well Ministries
Book Synopsis Living Well with a Disability by : Barbara Walsh-McCaffrey
Download or read book Living Well with a Disability written by Barbara Walsh-McCaffrey and published by Independently Published. This book was released on 2021-03-31 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: Barbara is no stranger to challenges in her life. Her first book, Overcoming Underachievement, depicts very well the problems she faced in high school and how and why she was able to achieve her goals in life. Her life hit another milestone when she was diagnosed with a serious illness called late onset Friedreich's Ataxia. It is a form of Muscular Dystrophy that is progressive and currently Barbara is in a wheelchair. Living Well with a Disability reflects her attitude, fears, hopes, and dreams. The book is a realistic approach to understanding disabilities and some of the pain and mental strife involved in moving on and finding happiness again through options, careers, faith, family, and friends. Barbara has many feelings of happiness and gratitude in her daily living and shares the importance of those emotions with you. Most of all, the book was written for you, your family members, and caregivers to know and understand that we certainly appreciate all they do for us, and we get it that there is sorrow in watching a loved one struggle. Welcome to Life! Let's express happiness when we can.
Book Synopsis Invisible Illness by : Megan A. Arroll
Download or read book Invisible Illness written by Megan A. Arroll and published by SPCK. This book was released on 2014-09-18 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Few books on invisible illness are written by psychologists. Based on work by the Chronic Illness Research Team (CIRT) at the University of East London, this expert, accessible book encourages people actively to manage their illness using the techniques shown. • Based on 20 years of research • Helps those often 'written off' by the medical profession • Pioneering text on Mal de Debarquement Syndrome (MdDS) • Authors specialist in chronic illness
Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 289 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
