Justice And The Human Genome Project

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Justice and the Human Genome Project

Author : Timothy F. Murphy
Publisher : Univ of California Press
ISBN 13 : 0520377931
Total Pages : 195 pages
Book Rating : 4.5/5 (23 download)

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Book Synopsis Justice and the Human Genome Project by : Timothy F. Murphy

Download or read book Justice and the Human Genome Project written by Timothy F. Murphy and published by Univ of California Press. This book was released on 2024-07-26 with total page 195 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Human Genome Project is an expensive, ambitious, and controversial attempt to locate and map every one of the approximately 100,000 genes in the human body. If it works, and we are able, for instance, to identify markers for genetic diseases long before they develop, who will have the right to obtain such information? What will be the consequences for health care, health insurance, employability, and research priorities? And, more broadly, how will attitudes toward human differences be affected, morally and socially, by the setting of a genetic “standard”? The compatibility of individual rights and genetic fairness is challenged by the technological possibilities of the future, making it difficult to create an agenda for a “just genetics.” Beginning with an account of the utopian dreams and authoritarian tendencies of historical eugenics movements, this book’s nine essays probe the potential social uses and abuses of detailed genetic information. Lucid and wide-ranging, these contributions will interest bioethicists, legal scholars, and policy makers. Essays: “The Genome Project and the Meaning of Difference,” Timothy F. Murphy “Eugenics and the Human Genome Project: Is the Past Prologue?,” Daniel J. Kevles “Handle with Care: Race, Class, and Genetics,” Arthur L. Caplan “Public Choices and Private Choices: Legal Regulation of Genetic Testing,” Lori B. Andrews “Rules for Gene Banks: Protecting Privacy in the Genetics Age,” George J. Annas “Use of Genetic Information by Private Insurers,” Robert J. Pokorski “The Genome Project, Individual Differences, and Just Health Care,” Norman Daniels “Just Genetics: A Problem Agenda,” Leonard M. Fleck “Justice and the Limitations of Genetic Knowledge,” Marc A. Lappé This title is part of UC Press's Voices Revived program, which commemorates University of California Press’s mission to seek out and cultivate the brightest minds and give them voice, reach, and impact. Drawing on a backlist dating to 1893, Voices Revived makes high-quality, peer-reviewed scholarship accessible once again using print-on-demand technology. This title was originally published in 1994.

Justice and the Human Genome Project

Author : Timothy F. Murphy
Publisher :
ISBN 13 :
Total Pages : 257 pages
Book Rating : 4.:/5 (224 download)

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Book Synopsis Justice and the Human Genome Project by : Timothy F. Murphy

Download or read book Justice and the Human Genome Project written by Timothy F. Murphy and published by . This book was released on 1993 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Postgenomic Condition

Author : Jenny Reardon
Publisher : University of Chicago Press
ISBN 13 : 022651045X
Total Pages : 320 pages
Book Rating : 4.2/5 (265 download)

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Book Synopsis The Postgenomic Condition by : Jenny Reardon

Download or read book The Postgenomic Condition written by Jenny Reardon and published by University of Chicago Press. This book was released on 2017-12-29 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: The postgenomic condition: an introduction -- The information of life or the life of information? -- Inclusion: can genomics be antiracist? -- Who represents the human genome? What is the human genome? -- Genomics for the people or the rise of the machines? -- Genomics for the 98 percent? -- The genomic open 2.0: the public v. the public -- Life on Third: knowledge and justice after the genome -- Epilogue

Race Decoded

Author : Catherine Bliss
Publisher : Stanford University Press
ISBN 13 : 0804782059
Total Pages : 281 pages
Book Rating : 4.8/5 (47 download)

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Book Synopsis Race Decoded by : Catherine Bliss

Download or read book Race Decoded written by Catherine Bliss and published by Stanford University Press. This book was released on 2012-05-23 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2000, with the success of the Human Genome Project, scientists declared the death of race in biology and medicine. But within five years, many of these same scientists had reversed course and embarked upon a new hunt for the biological meaning of race. Drawing on personal interviews and life stories, Race Decoded takes us into the world of elite genome scientists—including Francis Collins, director of the NIH; Craig Venter, the first person to create a synthetic genome; and Spencer Wells, National Geographic Society explorer-in-residence, among others—to show how and why they are formulating new ways of thinking about race. In this original exploration, Catherine Bliss reveals a paradigm shift, both at the level of science and society, from colorblindness to racial consciousness. Scientists have been fighting older understandings of race in biology while simultaneously promoting a new grand-scale program of minority inclusion. In selecting research topics or considering research design, scientists routinely draw upon personal experience of race to push the public to think about race as a biosocial entity, and even those of the most privileged racial and social backgrounds incorporate identity politics in the scientific process. Though individual scientists may view their positions differently—whether as a black civil rights activist or a white bench scientist—all stakeholders in the scientific debates are drawing on memories of racial discrimination to fashion a science-based activism to fight for social justice.

Achieving Justice in Genomic Translation

Author : Wylie Burke MD, PhD
Publisher : Oxford University Press
ISBN 13 : 0199909741
Total Pages : 223 pages
Book Rating : 4.1/5 (999 download)

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Book Synopsis Achieving Justice in Genomic Translation by : Wylie Burke MD, PhD

Download or read book Achieving Justice in Genomic Translation written by Wylie Burke MD, PhD and published by Oxford University Press. This book was released on 2011-09-15 with total page 223 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.

From Chance to Choice

Author : Allen Buchanan
Publisher : Cambridge University Press
ISBN 13 : 1316583937
Total Pages : pages
Book Rating : 4.3/5 (165 download)

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Book Synopsis From Chance to Choice by : Allen Buchanan

Download or read book From Chance to Choice written by Allen Buchanan and published by Cambridge University Press. This book was released on 2001-11-12 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, written by four internationally renowned bioethicists and first published in 2000, was the first systematic treatment of the fundamental ethical issues underlying the application of genetic technologies to human beings. Probing the implications of the remarkable advances in genetics, the authors ask how should these affect our understanding of distributive justice, equality of opportunity, the rights and obligations as parents, the meaning of disability, and the role of the concept of human nature in ethical theory and practice. The book offers a historical context to contemporary debate over the use of these technologies by examining the eugenics movement of the late nineteenth and early twentieth centuries. The questions raised in this book will be of interest to any reflective reader concerned about science and society and the rapid development of biotechnology, as well as to professionals in such areas as philosophy, bioethics, medical ethics, health management, law, and political science.

Genetics

Author : Ted Peters
Publisher :
ISBN 13 :
Total Pages : 280 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Genetics by : Ted Peters

Download or read book Genetics written by Ted Peters and published by . This book was released on 1998 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Can theological ethics provide direction in an arena that is dominated by the scientific? This collection of fresh, timely statements by leading ethicists, theologians, and legal experts explore the social and religious implications of this big-science research.

Justice and the Human Genome Project

Author : Timothy F. Murphy
Publisher : Univ of California Press
ISBN 13 : 0520414659
Total Pages : 194 pages
Book Rating : 4.5/5 (24 download)

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Book Synopsis Justice and the Human Genome Project by : Timothy F. Murphy

Download or read book Justice and the Human Genome Project written by Timothy F. Murphy and published by Univ of California Press. This book was released on 2024-07-26 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Human Genome Project is an expensive, ambitious, and controversial attempt to locate and map every one of the approximately 100,000 genes in the human body. If it works, and we are able, for instance, to identify markers for genetic diseases long before they develop, who will have the right to obtain such information? What will be the consequences for health care, health insurance, employability, and research priorities? And, more broadly, how will attitudes toward human differences be affected, morally and socially, by the setting of a genetic “standard”? The compatibility of individual rights and genetic fairness is challenged by the technological possibilities of the future, making it difficult to create an agenda for a “just genetics.” Beginning with an account of the utopian dreams and authoritarian tendencies of historical eugenics movements, this book’s nine essays probe the potential social uses and abuses of detailed genetic information. Lucid and wide-ranging, these contributions will interest bioethicists, legal scholars, and policy makers. Essays: “The Genome Project and the Meaning of Difference,” Timothy F. Murphy “Eugenics and the Human Genome Project: Is the Past Prologue?,” Daniel J. Kevles “Handle with Care: Race, Class, and Genetics,” Arthur L. Caplan “Public Choices and Private Choices: Legal Regulation of Genetic Testing,” Lori B. Andrews “Rules for Gene Banks: Protecting Privacy in the Genetics Age,” George J. Annas “Use of Genetic Information by Private Insurers,” Robert J. Pokorski “The Genome Project, Individual Differences, and Just Health Care,” Norman Daniels “Just Genetics: A Problem Agenda,” Leonard M. Fleck “Justice and the Limitations of Genetic Knowledge,” Marc A. Lappé This title is part of UC Press's Voices Revived program, which commemorates University of California Press’s mission to seek out and cultivate the brightest minds and give them voice, reach, and impact. Drawing on a backlist dating to 1893, Voices Revived makes high-quality, peer-reviewed scholarship accessible once again using print-on-demand technology. This title was originally published in 1994.

Distributive Justice and the New Medicine

Author : George Patrick Smith
Publisher : Edward Elgar Publishing
ISBN 13 : 1848441487
Total Pages : 201 pages
Book Rating : 4.8/5 (484 download)

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Book Synopsis Distributive Justice and the New Medicine by : George Patrick Smith

Download or read book Distributive Justice and the New Medicine written by George Patrick Smith and published by Edward Elgar Publishing. This book was released on 2010-01-01 with total page 201 pages. Available in PDF, EPUB and Kindle. Book excerpt: Smith has packed an incredible amount of information into this relatively short and clearly written book. His erudition is unquestionable, and his knowledge of current trends in medical technology and the ethical issues surrounding them is obvious on every page. P. Jenkins, Choice George P. Smith is one of the world s leading experts on the legal and ethical issues raised by modern medicine. His book is a wide-ranging and deeply informed and considered analysis of those issues, with particular emphasis on the inequality with which the benefits of modern medicine are bestowed on the sick. Knowledgeable as well about the technical aspects of the biomedical revolution, Smith writes with insight and authority, and offers a perspective that will influence the policy debates. Richard A. Posner, United States Court of Appeals for the Seventh Circuit and University of Chicago Law School, US While much has been written about the various issues addressed in this book genetics, cloning, informed consent, organ donation Smith s book moves beyond traditional legal analysis, tying these issues together by examining them through the lens of distributive justice. He thus provides the reader with a unique and valuable perspective on this important area. Distributive Justice and the New Medicine will be of interest to all those interested in health law and bioethics and in particular for those interested in distributive justice. Belinda Bennett, Journal of Law, Social Justice and Global Development Professor George P. Smith s Distributive Justice and the New Medicine is a major new work by one of the world s leading medical lawyers. This book brings important new insights into the complex area of rationing health care resources and should be read by anyone interested in seeking to create a just society. Jonathan Herring, Exeter College, University of Oxford, UK Is the advancement of scientific knowledge and the development of biomedical technologies known as the New Medicine desirable? George P. Smith asks this fundamental question while also confronting the distribution of these scarce medical resources. Law, economics, medical science, philosophy and ethics all coalesce in this discussion of how to structure normative standards of conduct that will improve the quality of human life. The author begins by examining various economic constructs as aids for achieving a fair and equitable delivery of health care services. He then assesses their level of practical application and evaluates the costs and benefits to society of pursuing the development and use of the New Medicine . The book ends with a case study of organ and tissue transplantation that illustrates the implementation of distributive justice. The author concludes that as long as clinical medicine maintains its focus on healing and alleviating suffering among patients, a point of equilibrium will be reached that advances the common good. This timely and compelling exploration will be a must-read for scholars, researchers, policymakers and all those interested in advances in medical technology and the issues surrounding access to health care.

Brave New World?

Author : Celia Deane-Drummond
Publisher : A&C Black
ISBN 13 : 9780567089366
Total Pages : 380 pages
Book Rating : 4.0/5 (893 download)

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Book Synopsis Brave New World? by : Celia Deane-Drummond

Download or read book Brave New World? written by Celia Deane-Drummond and published by A&C Black. This book was released on 2003-11-01 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of the key issues facing us in the next millennium is the ability to manipulate the genetics of living organisms. The possibility of manipulating human genetics raises many theological, ethical and socio-political issues. These include specific decisions about whether the technology will be developed, how it will be applied and more general questions about the technical manipulation of 'natural' processes. From a theological perspective the human genome project not only challenges particular doctrines, such as that of creation, eschatology and anthropology, but also raises particular issues of social justice and medical ethics. The purpose of this book is to bring together the collective expertise of theologians, scientists and social scientists in order to provide a forum for critique and public debate focused on the human genome project.It is hoped that the results presented in this book offer a sophisticated theological and ethical response.

New Perspectives on Environmental Justice

Author : Rachel Stein
Publisher : Rutgers University Press
ISBN 13 : 0813534275
Total Pages : 198 pages
Book Rating : 4.8/5 (135 download)

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Book Synopsis New Perspectives on Environmental Justice by : Rachel Stein

Download or read book New Perspectives on Environmental Justice written by Rachel Stein and published by Rutgers University Press. This book was released on 2004 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Women make up the vast majority of activists and organizers of grassroots movements fighting against environmental ills that threaten poor and people of color communities. [This] collection of essays ... pays tribute to the ... contributions women have made in these endeavors. The writers offer varied examples of environmental justice issues such as children's environmental-health campaigns, cancer research, AIDS/HIV activism, the Environmental Genome Project, and popular culture, among many others. Each one focuses on gender and sexuality as crucial factors in women's or gay men's activism and applies environmental justice principles to related struggles for sexual justice. Drawing on a wide variety of disciplinary perspectives, the contributors offer multiple vantage points on gender, sexuality, and activism.-Back cover.

Mapping and Sequencing the Human Genome

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309038405
Total Pages : 128 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Mapping and Sequencing the Human Genome by : National Research Council

Download or read book Mapping and Sequencing the Human Genome written by National Research Council and published by National Academies Press. This book was released on 1988-01-01 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is growing enthusiasm in the scientific community about the prospect of mapping and sequencing the human genome, a monumental project that will have far-reaching consequences for medicine, biology, technology, and other fields. But how will such an effort be organized and funded? How will we develop the new technologies that are needed? What new legal, social, and ethical questions will be raised? Mapping and Sequencing the Human Genome is a blueprint for this proposed project. The authors offer a highly readable explanation of the technical aspects of genetic mapping and sequencing, and they recommend specific interim and long-range research goals, organizational strategies, and funding levels. They also outline some of the legal and social questions that might arise and urge their early consideration by policymakers.

Law and Human Genetics

Author : Roger Brownsword
Publisher : Bloomsbury Publishing
ISBN 13 : 1847312969
Total Pages : 186 pages
Book Rating : 4.8/5 (473 download)

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Book Synopsis Law and Human Genetics by : Roger Brownsword

Download or read book Law and Human Genetics written by Roger Brownsword and published by Bloomsbury Publishing. This book was released on 1998-12-01 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: As developments in human genetics proceed apace,the regulation of genetic research and its applications is set to represent one of the major legal challenges of the next century. At every turn - in the fields of medicine and commerce, in insurance and employment, in the family and even in the criminal justice system - advances in human genetics threaten to transform our understanding of ourselves and the basis upon which we relate to one another. This special issue of the Modern Law Review addresses a range of key issues - conceptual, ethical, political and practical - arising from the regulatory challenge confronting the law in the face of the genetic revolution.

Postgenomics

Author : Sarah S. Richardson
Publisher : Duke University Press
ISBN 13 : 0822375443
Total Pages : 286 pages
Book Rating : 4.8/5 (223 download)

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Book Synopsis Postgenomics by : Sarah S. Richardson

Download or read book Postgenomics written by Sarah S. Richardson and published by Duke University Press. This book was released on 2015-05-29 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ten years after the Human Genome Project’s completion the life sciences stand in a moment of uncertainty, transition, and contestation. The postgenomic era has seen rapid shifts in research methodology, funding, scientific labor, and disciplinary structures. Postgenomics is transforming our understanding of disease and health, our environment, and the categories of race, class, and gender. At the same time, the gene retains its centrality and power in biological and popular discourse. The contributors to Postgenomics analyze these ruptures and continuities and place them in historical, social, and political context. Postgenomics, they argue, forces a rethinking of the genome itself, and opens new territory for conversations between the social sciences, humanities, and life sciences. Contributors. Russ Altman, Rachel A. Ankeny, Catherine Bliss, John Dupré, Michael Fortun, Evelyn Fox Keller, Sabina Leonelli, Adrian Mackenzie, Margot Moinester, Aaron Panofsky, Sarah S. Richardson, Sara Shostak, Hallam Stevens

The Human Genome Project

Author : Thomas F. Lee
Publisher : Springer
ISBN 13 : 1489960228
Total Pages : 322 pages
Book Rating : 4.4/5 (899 download)

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Book Synopsis The Human Genome Project by : Thomas F. Lee

Download or read book The Human Genome Project written by Thomas F. Lee and published by Springer. This book was released on 2013-12-11 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describes the ten-year, multimillion dollar Human Genome Project and its process of gene mapping; includes concerns of critics of the project.

Here Is a Human Being

Author : Misha Angrist
Publisher : Harper Collins
ISBN 13 : 0062010468
Total Pages : 356 pages
Book Rating : 4.0/5 (62 download)

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Book Synopsis Here Is a Human Being by : Misha Angrist

Download or read book Here Is a Human Being written by Misha Angrist and published by Harper Collins. This book was released on 2010-11-02 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a Human Being delivers the first in-depth look at the Personal Genome Project—the effort to construct complete genomic maps of a specific human beings—written by one of the study’s ten human participants. Misha Angrist recounts the project’s fascinating nuances, including the larger-than-life personalities of the research subjects, the entrepreneurial scientists at the helm, the bewildered and overwhelmed physicians and regulators who negotiated for it, the fascinating technology it employed, and the political, social, ethical and familial issues it continues to raise. In the vein of James Shreeve’s The Genome War, Craig J. Ventner’s My Life Decoded, and Francis J. Collins’ The Language of Life, Angrist’s informed exploration of this cutting-edge science is a gripping look at the present and future of genomics.

Genetic Justice

Author : Sheldon Krimsky
Publisher : Columbia University Press
ISBN 13 : 0231517807
Total Pages : 425 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis Genetic Justice by : Sheldon Krimsky

Download or read book Genetic Justice written by Sheldon Krimsky and published by Columbia University Press. This book was released on 2010-11-22 with total page 425 pages. Available in PDF, EPUB and Kindle. Book excerpt: National DNA databanks were initially established to catalogue the identities of violent criminals and sex offenders. However, since the mid-1990s, forensic DNA databanks have in some cases expanded to include people merely arrested, regardless of whether they've been charged or convicted of a crime. The public is largely unaware of these changes and the advances that biotechnology and forensic DNA science have made possible. Yet many citizens are beginning to realize that the unfettered collection of DNA profiles might compromise our basic freedoms and rights. Two leading authors on medical ethics, science policy, and civil liberties take a hard look at how the United States has balanced the use of DNA technology, particularly the use of DNA databanks in criminal justice, with the privacy rights of its citizenry. Krimsky and Simoncelli analyze the constitutional, ethical, and sociopolitical implications of expanded DNA collection in the United States and compare these findings to trends in the United Kingdom, Japan, Australia, Germany, and Italy. They explore many controversial topics, including the legal precedent for taking DNA from juveniles, the search for possible family members of suspects in DNA databases, the launch of "DNA dragnets" among local populations, and the warrantless acquisition by police of so-called abandoned DNA in the search for suspects. Most intriguing, Krimsky and Simoncelli explode the myth that DNA profiling is infallible, which has profound implications for criminal justice.