It's Not That Simple: Helping Families Navigate the Alzheimer's Journey

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Author :
Publisher : Alzheimer's Family Consulting
ISBN 13 : 9781735709611
Total Pages : 322 pages
Book Rating : 4.7/5 (96 download)

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Book Synopsis It's Not That Simple: Helping Families Navigate the Alzheimer's Journey by : Pam Ostrowski

Download or read book It's Not That Simple: Helping Families Navigate the Alzheimer's Journey written by Pam Ostrowski and published by Alzheimer's Family Consulting. This book was released on 2021-10-12 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

Creating Moments of Joy Along the Alzheimer's Journey

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Author :
Publisher : Purdue University Press
ISBN 13 : 1612494838
Total Pages : 298 pages
Book Rating : 4.6/5 (124 download)

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Book Synopsis Creating Moments of Joy Along the Alzheimer's Journey by : Jolene Brackey

Download or read book Creating Moments of Joy Along the Alzheimer's Journey written by Jolene Brackey and published by Purdue University Press. This book was released on 2016-11-15 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.

Meet Me Where I Am

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Author :
Publisher : Morgan James Publishing
ISBN 13 : 1683509595
Total Pages : 140 pages
Book Rating : 4.6/5 (835 download)

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Book Synopsis Meet Me Where I Am by : Mary Ann Drummond

Download or read book Meet Me Where I Am written by Mary Ann Drummond and published by Morgan James Publishing. This book was released on 2018-08-07 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Me Where I Am provides knowledge and essential tools to lovingly, confidently and, above all, successfully care for those who live with Alzheimer’s and related dementias. Over 5 million Americans currently live with Alzheimer’s disease. Along with them, 15 million unpaid caregivers seek knowledge and resources to assist them in the journey. The unique care principles found in Meet Me Where I Am help mitigate depression, decrease anxiety, and allow for successful relationships as long as possible in the dementia journey. Mary Ann Drummond, RN credits her unique care philosophy to the greatest teachers of all—the many individuals living with Alzheimer’s and related dementias she has had the pleasure of caring for over the years. Imbuing practical tips with wisdom, respect, and sensibility, Drummond comes full circle by sharing what happened when her own mentor fell prey to the disease. Meet Me Where I Am is a road map that teaches caregivers how to focus on the possibilities, discover the joy in the journey, and prepare for the road ahead.

The 24-Hour Rule

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Author :
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781537316468
Total Pages : 256 pages
Book Rating : 4.3/5 (164 download)

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Book Synopsis The 24-Hour Rule by : Cheryl Levin-Folio

Download or read book The 24-Hour Rule written by Cheryl Levin-Folio and published by Createspace Independent Publishing Platform. This book was released on 2016-10-26 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Michael Folio was in his mid-fifties, he was diagnosed with early-onset Alzheimer's. Naturally, he and his wife, Cheryl Levin-Folio, couldn't believe the news. But instead of running away from shock and fear of the unknown that accompanies such a diagnosis, the two let it sink in for a day and then created a plan to fight and do everything in their power to preserve, enhance and lengthen Michael's life. The 24-Hour Rule: Living with Alzheimer's is their positive, energetic, life-changing story. The book will help you care for your loved one with Alzheimer's and care for yourself, an equally essential component for managing the disease. Each chapter contains tips, strategies, and Cheryl's insights and personal experiences, all of which will help those afflicted with this devastating disease-and their caregivers-live from one day to the next with as much peace, enjoyment and dignity as possible. "Michael is demonstrating wonderful results compared to many patients at similar ages and stages of the illness. The menu of activities that Cheryl has assembled along with Michael's optimistic attitude have made this possible. Everything Michael and Cheryl are doing with their dedicated approach can help anyone affected with Alzheimer's. Unlike many books that focus on frightening aspects of future decline, The 24-Hour Rule: Living with Alzheimer's contains a wide range of helpful strategies for living every day to the fullest. I look forward to offering this enthusiastic how-to guide as a resource for all of our patients and families at the USF Health Byrd Alzheimer's Institute!" -Amanda G. Smith, M.D. - Medical Director USF Health Byrd Alzheimer's Institute - University of South Florida Health Byrd Alzheimer's Institute

The Emotional Journey of the Alzheimer's Family

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Author :
Publisher : Dartmouth College Press
ISBN 13 : 1611687454
Total Pages : 231 pages
Book Rating : 4.6/5 (116 download)

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Book Synopsis The Emotional Journey of the Alzheimer's Family by : Robert B. Santulli, MD

Download or read book The Emotional Journey of the Alzheimer's Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The 36-Hour Day

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Author :
Publisher : JHU Press
ISBN 13 : 1421441705
Total Pages : 361 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis The 36-Hour Day by : Nancy L. Mace

Download or read book The 36-Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.

Six Steps to Managing Alzheimer's Disease and Dementia

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190098147
Total Pages : 353 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Six Steps to Managing Alzheimer's Disease and Dementia by : Andrew E. Budson MD

Download or read book Six Steps to Managing Alzheimer's Disease and Dementia written by Andrew E. Budson MD and published by Oxford University Press. This book was released on 2021-08-23 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.

Moving a Relative and Other Transitions in Dementia Care

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Author :
Publisher :
ISBN 13 : 9781795079938
Total Pages : 186 pages
Book Rating : 4.0/5 (799 download)

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Book Synopsis Moving a Relative and Other Transitions in Dementia Care by : Beth Spencer

Download or read book Moving a Relative and Other Transitions in Dementia Care written by Beth Spencer and published by . This book was released on 2019-01-25 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: Moving a Relative & Other Transitions in Dementia Care is an expansion of our original book, Moving a Relative with Memory Loss (2000, 2006). This comprehensive guide is intended to support families from the beginning to the end of the caregiving journey. We are honored to have a panel of experts helping us address many other transitions that families face during the caregiving journey. These include decisions about safety, bringing in home care, preparing for hospitalization and end of life, talking with a relative about giving up driving, moving from out of state and more. A large section of the book is devoted to moving decisions and logistics, incorporating the content of the original book as well as new information. Case studies of real situations are sprinkled throughout the book, along with many practical suggestions. At the end is a comprehensive worksheet to take along with you when you visit residential care homes.

Keeping Love Alive as Memories Fade

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Publisher : Moody Publishers
ISBN 13 : 0802494412
Total Pages : 240 pages
Book Rating : 4.8/5 (24 download)

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Book Synopsis Keeping Love Alive as Memories Fade by : Gary Chapman

Download or read book Keeping Love Alive as Memories Fade written by Gary Chapman and published by Moody Publishers. This book was released on 2016-09-16 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.

The Busy Caregiver's Guide to Advanced Alzheimer Disease

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Author :
Publisher : JHU Press
ISBN 13 : 1421441071
Total Pages : 193 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis The Busy Caregiver's Guide to Advanced Alzheimer Disease by : Jennifer R. Stelter

Download or read book The Busy Caregiver's Guide to Advanced Alzheimer Disease written by Jennifer R. Stelter and published by JHU Press. This book was released on 2021-10-19 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--

Losing Mother Twice

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Author :
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781539516057
Total Pages : 184 pages
Book Rating : 4.5/5 (16 download)

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Book Synopsis Losing Mother Twice by : Regina Olson

Download or read book Losing Mother Twice written by Regina Olson and published by Createspace Independent Publishing Platform. This book was released on 2016-12-09 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors of Losing Mother Twice know how incredibly difficult it is to watch a loved one lose herself. They watched their mother navigate the treacherous path of Alzheimer's disease for almost ten years. It was a journey set in place by plaques and tangles in her brain, and it lasted until she could no longer find her way through the brambled path. Others who also watch aging parents, failing spouses, or declining siblings struggle with dementia are not alone on the journey. This story of loss may be their story as well. The nature of the disease a family is up against becomes clearer once they face the enormity of the problem. Clarity, however, is not so easy to achieve when in the thick of it . . . as the disease is taking a mother away from them in slow motion . . . even while her physical body survives . . . even though she no longer knows who they are . . . even when she can no longer say, "I'm ready. I don't know why the good Lord doesn't take me." What the authors have learned about facing Alzheimer's disease results not only from their lived experience but also from their study of dementia. The authors share answers to important questions: What is the difference between dementia and Alzheimer's? How does one deal with a loved one when dementia causes behavior changes. What are the children's chances of inheriting the disease? Why does a person with Alzheimer's remember words to her favorite hymns and yet does not remember her children's names? This engaging story about family makes complex information accessible by placing discussion of dementia within the context of their mother's life-one person among the millions afflicted by the common tragedy that is Alzheimer's disease. A discussion guide for book clubs is included.

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's

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Author :
Publisher : Liveright Publishing
ISBN 13 : 1631497995
Total Pages : 185 pages
Book Rating : 4.6/5 (314 download)

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Book Synopsis Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's by : Patti Davis

Download or read book Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

My Two Elaines

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Publisher : Harper Horizon
ISBN 13 : 0785291709
Total Pages : 192 pages
Book Rating : 4.7/5 (852 download)

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Book Synopsis My Two Elaines by : Martin J Schreiber

Download or read book My Two Elaines written by Martin J Schreiber and published by Harper Horizon. This book was released on 2022-06-13 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's

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Author :
Publisher : Ambassador International
ISBN 13 : 1649603371
Total Pages : 91 pages
Book Rating : 4.6/5 (496 download)

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Book Synopsis The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's by : Shelly Calcagno

Download or read book The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's written by Shelly Calcagno and published by Ambassador International. This book was released on 2022-11-15 with total page 91 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.

Untangling Alzheimer's

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Author :
Publisher :
ISBN 13 : 9780985445027
Total Pages : 281 pages
Book Rating : 4.4/5 (45 download)

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Book Synopsis Untangling Alzheimer's by : Tam Cummings

Download or read book Untangling Alzheimer's written by Tam Cummings and published by . This book was released on 2013-04 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: A gerontologist explains dementia and Alzheimer's disease, from diagnosis to death in terms family and professional caregivers can understand. The stages of dementia, the history of Alzheimer's and the physiology of the disease are explained. Communication techniques, working with and tracking combative behaviors for the doctor are discussed, as well as techniques to address caregiver stress. Activities for person's with dementia are offered. The progression of the disease with an emphasis on the A's of Alzheimer's are provided, giving caregivers a clear explanation of falls, loss of speech, movement and memory. Vignettes from case histories are used to illustrate key points in the book. A detailed and compassionate explanation of the end of life is presented for caregivers.

The 36-hour Day

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Author :
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (298 download)

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Book Synopsis The 36-hour Day by :

Download or read book The 36-hour Day written by and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Navigating the Journey of Aging Parents

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Author :
Publisher : Routledge
ISBN 13 : 1135441197
Total Pages : 193 pages
Book Rating : 4.1/5 (354 download)

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Book Synopsis Navigating the Journey of Aging Parents by : Cheryl A. Kuba

Download or read book Navigating the Journey of Aging Parents written by Cheryl A. Kuba and published by Routledge. This book was released on 2013-05-13 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating the Journey of Aging Parents proposes an entirely unique approach to the field of gerontology, giving dependent care receivers a voice. Caregivers will be made aware of what care receivers truly want during life's final chapters. Exploring issues of housing, spirituality, personal care and death, Cheryl Kuba has created a testament to the dependent elderly. This book draws on numerous interviews with aging people and discusses common caregiver mistakes and interpretations, what a caregiver should expect when an aging parent moves in, and how to care for an aging parent from afar. Kuba also delves into such phenomena as guilt, role reversal, changing family dynamics, financial stress, and caring for oneself while caring for another. The 22.4 million elderly people being cared for in the United States comprises the fastest growing segment of the population, making this reference on the opinions and concerns of care receivers invaluable.