Home And Community Based Care

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Home- and Community-Based Services for Older Adults

Author : Keith Anderson
Publisher : Columbia University Press
ISBN 13 : 0231546998
Total Pages : 360 pages
Book Rating : 4.2/5 (315 download)

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Book Synopsis Home- and Community-Based Services for Older Adults by : Keith Anderson

Download or read book Home- and Community-Based Services for Older Adults written by Keith Anderson and published by Columbia University Press. This book was released on 2018-05-01 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: As older adults and their families opt out of nursing homes, a range of home and community-based services (HCBS) have risen up to provide care. HCBS span platforms and approaches, from home health care to assisted living to community-based hospice to adult day services. These models are, for most, preferable to nursing homes and allow older adults to “age in place”—live longer in their own homes and communities. Home- and Community-Based Services for Older Adults examines the existing and emerging models of HCBS, including the history, theory, research, policy, and practices across care settings. Emphasizing the multidisciplinary and interprofessional practice approaches used to deliver care, this book is an essential learning tool for students interested in medicine, nursing, social work, allied health professions, case management, health care administration, and gerontology. As the population of older adults grows, the authors ask, how can we best meet the needs of older adults and their families in the most effective, cost-conscious way while honoring their care choices?

Medicaid Eligibility Quality Control: The review process

Author : United States. Social and Rehabilitation Service
Publisher :
ISBN 13 :
Total Pages : 132 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Medicaid Eligibility Quality Control: The review process by : United States. Social and Rehabilitation Service

Download or read book Medicaid Eligibility Quality Control: The review process written by United States. Social and Rehabilitation Service and published by . This book was released on 1975 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Best at Home

Author : Jill C. Feasley
Publisher : National Academies
ISBN 13 :
Total Pages : 88 pages
Book Rating : 4.1/5 (418 download)

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Book Synopsis Best at Home by : Jill C. Feasley

Download or read book Best at Home written by Jill C. Feasley and published by National Academies. This book was released on 1996 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Future of Home Health Care

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309367565
Total Pages : 168 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis The Future of Home Health Care by : National Research Council

Download or read book The Future of Home Health Care written by National Research Council and published by National Academies Press. This book was released on 2015-08-04 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: Individuals with disabilities, chronic conditions, and functional impairments need a range of services and supports to keep living independently. However, there often is not a strong link between medical care provided in the home and the necessary social services and supports for independent living. Home health agencies and others are rising to the challenges of meeting the needs and demands of these populations to stay at home by exploring alternative models of care and payment approaches, the best use of their workforces, and technologies that can enhance independent living. All of these challenges and opportunities lead to the consideration of how home health care fits into the future health care system overall. On September 30 and October 1, 2014, the Institute of Medicine and the National Research Council convened a public workshop on the future of home health care. The workshop brought together a spectrum of public and private stakeholders and thought leaders to improve understanding of the current role of Medicare home health care in supporting aging in place and in helping high-risk, chronically ill, and disabled Americans receive health care in their communities. Through presentations and discussion, participants explored the evolving role of Medicare home health care in caring for Americans in the future, including how to integrate Medicare home health care into new models for the delivery of care and the future health care marketplace. The workshop also considered the key policy reforms and investments in workforces, technologies, and research needed to leverage the value of home health care to support older Americans, and research priorities that can help clarify the value of home health care. This summary captures important points raised by the individual speakers and workshop participants.

Improving the Quality of Long-Term Care

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309132746
Total Pages : 344 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Improving the Quality of Long-Term Care by : Institute of Medicine

Download or read book Improving the Quality of Long-Term Care written by Institute of Medicine and published by National Academies Press. This book was released on 2001-02-27 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: Among the issues confronting America is long-term care for frail, older persons and others with chronic conditions and functional limitations that limit their ability to care for themselves. Improving the Quality of Long-Term Care takes a comprehensive look at the quality of care and quality of life in long-term care, including nursing homes, home health agencies, residential care facilities, family members and a variety of others. This book describes the current state of long-term care, identifying problem areas and offering recommendations for federal and state policymakers. Who uses long-term care? How have the characteristics of this population changed over time? What paths do people follow in long term care? The committee provides the latest information on these and other key questions. This book explores strengths and limitations of available data and research literature especially for settings other than nursing homes, on methods to measure, oversee, and improve the quality of long-term care. The committee makes recommendations on setting and enforcing standards of care, strengthening the caregiving workforce, reimbursement issues, and expanding the knowledge base to guide organizational and individual caregivers in improving the quality of care.

Nutrition and Healthy Aging in the Community

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309253101
Total Pages : 152 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Nutrition and Healthy Aging in the Community by : Institute of Medicine

Download or read book Nutrition and Healthy Aging in the Community written by Institute of Medicine and published by National Academies Press. This book was released on 2012-06-15 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: The U.S. population of older adults is predicted to grow rapidly as "baby boomers" (those born between 1946 and 1964) begin to reach 65 years of age. Simultaneously, advancements in medical care and improved awareness of healthy lifestyles have led to longer life expectancies. The Census Bureau projects that the population of Americans 65 years of age and older will rise from approximately 40 million in 2010 to 55 million in 2020, a 36 percent increase. Furthermore, older adults are choosing to live independently in the community setting rather than residing in an institutional environment. Furthermore, the types of services needed by this population are shifting due to changes in their health issues. Older adults have historically been viewed as underweight and frail; however, over the past decade there has been an increase in the number of obese older persons. Obesity in older adults is not only associated with medical comorbidities such as diabetes; it is also a major risk factor for functional decline and homebound status. The baby boomers have a greater prevalence of obesity than any of their historic counterparts, and projections forecast an aging population with even greater chronic disease burden and disability. In light of the increasing numbers of older adults choosing to live independently rather than in nursing homes, and the important role nutrition can play in healthy aging, the Institute of Medicine (IOM) convened a public workshop to illuminate issues related to community-based delivery of nutrition services for older adults and to identify nutrition interventions and model programs. Nutrition and Healthy Aging in the Community summarizes the presentations and discussions prepared from the workshop transcript and slides. This report examines nutrition-related issues of concern experienced by older adults in the community including nutrition screening, food insecurity, sarcopenic obesity, dietary patterns for older adults, and economic issues. This report explores transitional care as individuals move from acute, subacute, or chronic care settings to the community, and provides models of transitional care in the community. This report also provides examples of successful intervention models in the community setting, and covers the discussion of research gaps in knowledge about nutrition interventions and services for older adults in the community.

The Role of Telehealth in an Evolving Health Care Environment

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309262054
Total Pages : 159 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis The Role of Telehealth in an Evolving Health Care Environment by : Institute of Medicine

Download or read book The Role of Telehealth in an Evolving Health Care Environment written by Institute of Medicine and published by National Academies Press. This book was released on 2012-11-20 with total page 159 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1996, the Institute of Medicine (IOM) released its report Telemedicine: A Guide to Assessing Telecommunications for Health Care. In that report, the IOM Committee on Evaluating Clinical Applications of Telemedicine found telemedicine is similar in most respects to other technologies for which better evidence of effectiveness is also being demanded. Telemedicine, however, has some special characteristics-shared with information technologies generally-that warrant particular notice from evaluators and decision makers. Since that time, attention to telehealth has continued to grow in both the public and private sectors. Peer-reviewed journals and professional societies are devoted to telehealth, the federal government provides grant funding to promote the use of telehealth, and the private technology industry continues to develop new applications for telehealth. However, barriers remain to the use of telehealth modalities, including issues related to reimbursement, licensure, workforce, and costs. Also, some areas of telehealth have developed a stronger evidence base than others. The Health Resources and Service Administration (HRSA) sponsored the IOM in holding a workshop in Washington, DC, on August 8-9 2012, to examine how the use of telehealth technology can fit into the U.S. health care system. HRSA asked the IOM to focus on the potential for telehealth to serve geographically isolated individuals and extend the reach of scarce resources while also emphasizing the quality and value in the delivery of health care services. This workshop summary discusses the evolution of telehealth since 1996, including the increasing role of the private sector, policies that have promoted or delayed the use of telehealth, and consumer acceptance of telehealth. The Role of Telehealth in an Evolving Health Care Environment: Workshop Summary discusses the current evidence base for telehealth, including available data and gaps in data; discuss how technological developments, including mobile telehealth, electronic intensive care units, remote monitoring, social networking, and wearable devices, in conjunction with the push for electronic health records, is changing the delivery of health care in rural and urban environments. This report also summarizes actions that the U.S. Department of Health and Human Services (HHS) can undertake to further the use of telehealth to improve health care outcomes while controlling costs in the current health care environment.

Policy and Research Needs to Maximize Independence and Support Community Living

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309391091
Total Pages : 117 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Policy and Research Needs to Maximize Independence and Support Community Living by : National Academies of Sciences, Engineering, and Medicine

Download or read book Policy and Research Needs to Maximize Independence and Support Community Living written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-06-10 with total page 117 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living independently and participating in one's community are priorities for many people. In many regions across the United States, there are programs that support and enable people with disabilities and older adults to live where they choose and with whom they choose and to participate fully in their communities. Tremendous progress has been made. However, in many cases, the programs themselves â€" and access to them â€" vary not only between states but also within states. Many programs are small, and even when they prove to be successful they are still not scaled up to meet the needs of the many people who would benefit from them. The challenges can include insufficient workforce, insufficient funding, and lack of evidence demonstrating effectiveness or value. To get a better understanding of the policies needed to maximize independence and support community living and of the research needed to support implementation of those policies, the National Academies of Sciences, Engineering, and Medicine convened a public workshop in October 2015. Participants explored policies in place that promote independence and community living for older adults and people with physical disabilities, and identified policies and gaps in policies that can be barriers to independence and the research needed to support changing those policies. This report summarizes the presentations and discussions from the workshop.

Building Connected Communities of Care

Author : Keith Kosel
Publisher : CRC Press
ISBN 13 : 100003707X
Total Pages : 258 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Building Connected Communities of Care by : Keith Kosel

Download or read book Building Connected Communities of Care written by Keith Kosel and published by CRC Press. This book was released on 2020-02-20 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a community, aligning efforts across a community to support the safety and well-being of vulnerable and underserved individuals is extraordinarily difficult. These individuals suffer disproportionally from health issues, job loss, a lack of stable housing, high utility costs, substance abuse, and homelessness. In addition to medical care, these individuals often critically need access to community social sector organizations that provide a distinct and complementary set of services, such as housing, food services, emergency utility assistance, and employment assistance. These services are just as vital as healthcare services to these individuals’ long-term health and well-being, with data suggesting that 80–90% of health outcomes can be attributed to factors beyond direct medical intervention. This book proposes a novel approach to the coordination of medicine and social services through the use of people, process, and technology, with the goal being to streamline coordination between medical and Community-Based Organizations and to promote true cross-sector patient and client advocacy. The book is based on the experience of Dallas, TX, which was one of the first metropolitan regions to develop a comprehensive foundation for partnership between a community’s clinical and social sectors using web-based information exchange. In the 5 years since the initial launch, the authors have been able to provide seamless connection, communication, and coordination between healthcare providers and a wide array of community-based social service organizations (a/k/a Community-Based Organizations or CBOs), criminal justice entities, and various other community organizations, including non-collegiate educational systems. This practical how-to guide is the codification of transferrable lessons from successes and challenges faced when working with clinical, community, and government leaders. By reading this playbook, leaders interested in building (or expanding) connected clinical-community services will learn how to: 1) facilitate cross-sector care coordination; 2) enable community care partners to better provide targeted services to community residents; 3) reduce duplication of services across partnering organizations; and 4) help to bridge service gaps in the currently fragmented system. Implementation of services, as recommended in this book, will ultimately streamline assistance efforts, reduce repeat crises and emergency funding requests, help address disparities of care, and improve the health, safety, and well-being of the most vulnerable community residents.

Social Work Practice in Community-Based Health Care

Author : Marcia Egan
Publisher : Routledge
ISBN 13 : 1136427236
Total Pages : 274 pages
Book Rating : 4.1/5 (364 download)

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Book Synopsis Social Work Practice in Community-Based Health Care by : Marcia Egan

Download or read book Social Work Practice in Community-Based Health Care written by Marcia Egan and published by Routledge. This book was released on 2012-11-12 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: Make sure your practice skills are up-to-date with the changes brought on by managed care As a result of escalating costs, the focus of health care in the United States has shifted from inpatient, hospital-based care to outpatient care in the community. Social Work Practice in Community-Based Health Care is a comprehensive guide to the knowledge and skills needed to provide effective and efficient practice within a managed-care context that’s focused on a diversified, aging consumer population and high-risk health conditions. This unique book examines the essential elements of community health practice, including logic modeling for planning and evaluation, interdisciplinary collaboration, and the use of technology and telemedicine in social work practice. Social Work Practice in Community-Based Health Care presents practical information for social workers in the wake of the insertion of managed care as a “third party” to the relationship between physicians and their patients, and advances in medical care that are transforming previously acute and life-threatening illnesses to chronic conditions. The book offers a critical analysis of available research and model service delivery innovations, applying evidence-based practice to case studies in a style that’s easily accessible to practitioners, administrators, supervisors, and social work students. The book also includes glossaries at the end of each chapter and appendices that analyze online resources and address cultural background assessment questions. Topics discussed in Social Work Practice in Community-Based Health Care include: the revolution in funding and delivery evolving trends and healthcare needs of the consumer population a conceptual framework for culturally competent practice the nature of social work in ambulatory health a brief history of healthcare social work emerging practice settings the use of new communication technologies in practice methods for evaluating direct practice ethical considerations current community-based programs for culturally diverse and at-risk populations and much more Social Work Practice in Community-Based Health Care is an important resource for social work practitioners, academics, and students.

The Healthcare Imperative

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309144337
Total Pages : 852 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Healthcare Imperative by : Institute of Medicine

Download or read book The Healthcare Imperative written by Institute of Medicine and published by National Academies Press. This book was released on 2011-01-17 with total page 852 pages. Available in PDF, EPUB and Kindle. Book excerpt: The United States has the highest per capita spending on health care of any industrialized nation but continually lags behind other nations in health care outcomes including life expectancy and infant mortality. National health expenditures are projected to exceed $2.5 trillion in 2009. Given healthcare's direct impact on the economy, there is a critical need to control health care spending. According to The Health Imperative: Lowering Costs and Improving Outcomes, the costs of health care have strained the federal budget, and negatively affected state governments, the private sector and individuals. Healthcare expenditures have restricted the ability of state and local governments to fund other priorities and have contributed to slowing growth in wages and jobs in the private sector. Moreover, the number of uninsured has risen from 45.7 million in 2007 to 46.3 million in 2008. The Health Imperative: Lowering Costs and Improving Outcomes identifies a number of factors driving expenditure growth including scientific uncertainty, perverse economic and practice incentives, system fragmentation, lack of patient involvement, and under-investment in population health. Experts discussed key levers for catalyzing transformation of the delivery system. A few included streamlined health insurance regulation, administrative simplification and clarification and quality and consistency in treatment. The book is an excellent guide for policymakers at all levels of government, as well as private sector healthcare workers.

Narrative Medicine and Community-Based Health Care and Planning

Author : John W Murphy
Publisher : Springer
ISBN 13 : 3319618571
Total Pages : 136 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis Narrative Medicine and Community-Based Health Care and Planning by : John W Murphy

Download or read book Narrative Medicine and Community-Based Health Care and Planning written by John W Murphy and published by Springer. This book was released on 2017-09-30 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: This progressive resource brings the innovative power of narrative medicine to the forefront of community public health care. Chapters describe community involvement across a continuum of control, from health consultants describing problems and suggesting solutions to health committees designing programs and evaluating results. Narrative strategies to this end, including authentic dialogue and community mapping, are examined in the context of public health and fleshed out with examples of different levels of participation by community members. From the respectful collaboration modeled here, the principles of community public health care can potentially expand beyond the immediate community into other social domains on a greater scale. Included in the coverage: · Narratives, local knowledge, and world entry. · Community and narratives. · What is dialogue? · Storylines, causes, and locus of interventions. · Community mapping tells a story. · The politics of storytelling. Narrative Medicine and Community-Based Health Care and Planning gives health psychologists, sociologists, social workers, and public health administrators realistic practical insights for tapping into the unique resources communities and clients have to offer. This is the next step in the evolution of public health, toward large-scale improvements in care delivery, access to and relevance of services, and patient and community outcomes.

Patient Safety and Quality

Author : Ronda Hughes
Publisher : Department of Health and Human Services
ISBN 13 :
Total Pages : 592 pages
Book Rating : 4.:/5 (318 download)

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Book Synopsis Patient Safety and Quality by : Ronda Hughes

Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Federalism and Health Policy

Author : Alan Weil
Publisher : The Urban Insitute
ISBN 13 : 9780877667162
Total Pages : 448 pages
Book Rating : 4.6/5 (671 download)

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Book Synopsis Federalism and Health Policy by : Alan Weil

Download or read book Federalism and Health Policy written by Alan Weil and published by The Urban Insitute. This book was released on 2003 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: The balance between state and federal health care financing for low-income people has been a matter of considerable debate for the last 40 years. Some argue for a greater federal role, others for more devolution of responsibility to the states. Medicaid, the backbone of the system, has been plagued by an array of problems that have made it unpopular and difficult to use to extend health care coverage. In recent years, waivers have given the states the flexibility to change many features of their Medicaid programs; moreover, the states have considerable flexibility to in establishing State Children's Health Insurance Programs. This book examines the record on the changing health safety net. How well have states done in providing acute and long-term care services to low-income populations? How have they responded to financial incentives and federal regulatory requirements? How innovative have they been? Contributing authors include Donald J. Boyd, Randall R. Bovbjerg, Teresa A. Coughlin, Ian Hill, Michael Housman, Robert E. Hurley, Marilyn Moon, Mary Beth Pohl, Jane Tilly, and Stephen Zuckerman.

Disease Control Priorities, Third Edition (Volume 2)

Author : Robert Black
Publisher : World Bank Publications
ISBN 13 : 1464803684
Total Pages : 416 pages
Book Rating : 4.4/5 (648 download)

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Book Synopsis Disease Control Priorities, Third Edition (Volume 2) by : Robert Black

Download or read book Disease Control Priorities, Third Edition (Volume 2) written by Robert Black and published by World Bank Publications. This book was released on 2016-04-11 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: The evaluation of reproductive, maternal, newborn, and child health (RMNCH) by the Disease Control Priorities, Third Edition (DCP3) focuses on maternal conditions, childhood illness, and malnutrition. Specifically, the chapters address acute illness and undernutrition in children, principally under age 5. It also covers maternal mortality, morbidity, stillbirth, and influences to pregnancy and pre-pregnancy. Volume 3 focuses on developments since the publication of DCP2 and will also include the transition to older childhood, in particular, the overlap and commonality with the child development volume. The DCP3 evaluation of these conditions produced three key findings: 1. There is significant difficulty in measuring the burden of key conditions such as unintended pregnancy, unsafe abortion, nonsexually transmitted infections, infertility, and violence against women. 2. Investments in the continuum of care can have significant returns for improved and equitable access, health, poverty, and health systems. 3. There is a large difference in how RMNCH conditions affect different income groups; investments in RMNCH can lessen the disparity in terms of both health and financial risk.

State Data Book

Author : United States. Rehabilitation Services Administration. Division of Monitoring and Program Analysis. Statistical Analysis and Systems Branch
Publisher :
ISBN 13 :
Total Pages : 44 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis State Data Book by : United States. Rehabilitation Services Administration. Division of Monitoring and Program Analysis. Statistical Analysis and Systems Branch

Download or read book State Data Book written by United States. Rehabilitation Services Administration. Division of Monitoring and Program Analysis. Statistical Analysis and Systems Branch and published by . This book was released on with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Demystifying Disability

Author : Emily Ladau
Publisher : Ten Speed Press
ISBN 13 : 1984858971
Total Pages : 177 pages
Book Rating : 4.9/5 (848 download)

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Book Synopsis Demystifying Disability by : Emily Ladau

Download or read book Demystifying Disability written by Emily Ladau and published by Ten Speed Press. This book was released on 2021-09-07 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body People with disabilities are the world’s largest minority, an estimated 15 percent of the global population. But many of us—disabled and nondisabled alike—don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including: • How to appropriately think, talk, and ask about disability • Recognizing and avoiding ableism (discrimination toward disabled people) • Practicing good disability etiquette • Ensuring accessibility becomes your standard practice, from everyday communication to planning special events • Appreciating disability history and identity • Identifying and speaking up about disability stereotypes in media Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience. Praise for Demystifying Disability “Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely.”—Judy Heumann, international disability rights advocate and author of Being Heumann “Emily Ladau has done her homework, and Demystifying Disability is her candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation. A teacher who makes you forget you’re learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary Resilient Disabled Body