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Family Cohesion And Perceived Stress As Predictors Of Quality Of Life In Maternal Caregivers Of Children With Autism Spectrum Disorder
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Book Synopsis Family Cohesion and Perceived Stress as Predictors of Quality of Life in Maternal Caregivers of Children with Autism Spectrum Disorder by : Emily Henry
Download or read book Family Cohesion and Perceived Stress as Predictors of Quality of Life in Maternal Caregivers of Children with Autism Spectrum Disorder written by Emily Henry and published by . This book was released on 2019 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns by : Colleen M. Harker
Download or read book Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns written by Colleen M. Harker and published by . This book was released on 2018 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the unique demands of raising a child with autism spectrum disorder (ASD), it is necessary to understand the impact on the quality of life (QoL) of their caregivers. Though QoL is considered an important outcome in health services research (Moons et al., 2006; Oliveira, Carvalho, & Esteves 2016), there is a lack of knowledge about QoL in caregivers of children with ASD or caregivers of children for whom there are ASD concerns, but no formal diagnosis. The objectives of the current study were to (1) Examine how having a young child with ASD or ASD concerns affects caregiver QoL, relative to children with other developmental concerns and typical development; (2) Examine profiles across QoL domains within each caregiver group to determine which QoL domains were most impacted relative to other domains; (3) Examine to what extent three levels of determinants contribute to caregiver QoL: family demographic (child age, family income, caregiver employment status, number of children in the home), psychological (parenting stress), and health care (family-centered care); and 4) (Exploratory) Examine the extent to which family centered care moderates the relation between parenting stress and QoL. The sample was drawn from a larger NIH study examining screening and referral practices for children with ASD in primary care provider (PCP) practices and early intervention (EI) agencies in Washington State. The sample was comprised of three groups: caregivers of children with ASD or ASD concerns (ASD/ASD Concerns; n = 42), caregivers of children with other developmental concerns (Other Concerns; n = 34), and caregivers of children with typical development (No Concerns; n = 112). Caregivers completed a measure of family demographics, parenting stress, family-centered care, and QoL at their time of entry in the study. Results indicated that caregivers in the ASD/ASD Concerns group reported significantly lower Psychological and Social QoL than caregivers in the Other Concerns group and the No Concerns group, and significantly lower Environmental QoL and Physical QoL than caregivers in the No Concerns group (Objective 1). For caregivers in the ASD/ASD Concerns group, Social QoL was significantly lower than Environmental and Physical QoL and Psychological QoL was significantly lower than Environmental QoL (Objective 2). Income, parenting stress, and family-centered care were significant predictors for all four QoL domains, while the number of children residing in the home was a significant predictor for Physical QoL only. There was also a significant group by stress interaction for Environmental QoL, such that there was a stronger negative relationship between parenting stress and Environmental QoL for caregivers in the ASD/ASD Concerns group compared to caregivers in the No Concerns group (Objective 3). Family-centered care did not moderate the relationship between parenting stress and QoL as predicted (Objective 4). Overall, these findings suggest that future research is needed to determine how to provide additional support to all caregivers, particularly low-income families and caregivers who are experiencing high levels of parenting stress and low levels of family-centered care.
Book Synopsis The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household by : Alisa Tamarrah Cook
Download or read book The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household written by Alisa Tamarrah Cook and published by . This book was released on 2021 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Parenting Styles as a Predictor of Parenting Stress and Family Quality of Life in Mothers of Sons with Autism Spectrum Disorder by : Karis Cochrane
Download or read book Parenting Styles as a Predictor of Parenting Stress and Family Quality of Life in Mothers of Sons with Autism Spectrum Disorder written by Karis Cochrane and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children with Autism Spectrum Disorder (ASD) experience higher levels of parenting stress and lower family quality of life (FQOL), relative to both parents of typically developing children and parents of children with other disabilities; this is especially true for mothers of children with ASD. Baumrind's (1966) parenting styles (authoritative, authoritarian, permissive) have been proposed to play a key role in the risk for elevated parenting stress and low FQOL in this population; however, the current literature has no consensus on which parenting styles contribute more or less to the increased risk in the ASD population. Therefore, this study explored which parenting styles were related to greater or lesser levels of parenting stress and better or worse levels of FQOL in mothers of sons with ASD. The frequency with which each parenting style was used in this population was also explored. A total of 52 mothers of sons, ages 6 to 11 years with ASD were recruited through autism organizations, programs, and support groups in Canada and the United States to complete an online survey. Two independent hierarchical linear regression analyses were conducted; the first was run with parenting styles and parenting stress and the second with parenting styles and FQOL. In the opposite direction of what was hypothesized, the authoritative parenting style was associated with the lowest levels of parenting stress and the highest FQOL, whereas the permissive parenting style was associated with the highest levels of parenting stress and the lowest FQOL. Finally, in line with what was hypothesized, the authoritative parenting style was the most commonly employed parenting style in this population.
Book Synopsis Handbook of Treatments for Autism Spectrum Disorder by : Johnny L. Matson
Download or read book Handbook of Treatments for Autism Spectrum Disorder written by Johnny L. Matson and published by Springer. This book was released on 2017-10-03 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook provides a comprehensive review of the numerous factors associated with treatments for children, youth, and adults with autism spectrum disorder (ASD). It offers in-depth analysis of evidence-based treatments for young children, providing coverage on interventions within social skills training, school curricula, communication and speech training, and augmentative communication. It also covers treatments for adolescents and adults, including vocational programs, social integration programs, and mental health resources. Chapters also review several popular interventions such as functional behavior analysis, sensory integration therapy, early intensive behavioral interventions (EIBI), and floor time. In addition, the Handbook discusses standards of practice, focusing on ethical issues, review boards, training concerns, and informed consent. Topics featured in the Handbook include: Training for parents of individuals diagnosed with ASD. Treatment of socially reinforced problem behavior. Comorbid challenging behaviors. Post-secondary education supports and programs for adults. The TEACCH Program for people with ASD. Treatment of addiction in adults with ASD. Diet and nutrition based treatments targeted at children with ASD. The Handbook of Treatments for Autism Spectrum Disorder is a must-have reference for researchers, clinicians/professionals, and graduate students in clinical child, school, and developmental psychology, child and adolescent psychiatry, and social work as well as rehabilitation medicine/therapy, behavioral therapy, pediatrics, and educational psychology.
Book Synopsis Quality of Life in Families of Children with Autism Spectrum Disorder by : Emily Claire Gardiner
Download or read book Quality of Life in Families of Children with Autism Spectrum Disorder written by Emily Claire Gardiner and published by . This book was released on 2014 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having a family member with a neurodevelopmental disorder (NDD) has significant implications for family functioning. Overall, research findings demonstrate that families of children with NDDs are less satisfied with their quality of life (QOL), across domains, than families of typically developing children, and that families of children with Autism Spectrum Disorder (ASD) are even less so. Although families of children with ASD are significantly at-risk, most research has included families of children with varied conditions, and has not examined predictors of family quality of life (FQOL) within specific NDD populations. This research gap, along with rising ASD awareness and prevalence, provides a strong rationale for devoting attention to this group specifically, and addressing the limitations that exist within this work. This research utilized a mixed-methods design to examine QOL among 84 families of children and adolescents (aged 6-18 years) with ASD living in British Columbia, and addressed three aims. First, the role of child characteristics, including adaptive functioning and behaviour problems, was examined in relation to FQOL. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). Second, the relation between endorsed family resilience processes, based on Walsh's (2006, 2012) model, and FQOL satisfaction was examined. This revealed that greater endorsement of the 'family connectedness' and 'family communication and problem solving' processes significantly predicted FQOL when child and family demographic characteristics were accounted for. Finally, a subset (n = 15) of caregivers, representing both high and low levels of FQOL satisfaction, participated in a qualitative interview, during which they shared their perceptions of FQOL, both generally and in relation to specific topics, elaborated on service delivery experiences, and reflected on sources of family resilience. The findings are discussed in light of previous research, and the associated practice implications, as well as opportunities for future research, are highlighted.
Book Synopsis Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) by : Kerry Ryan Thompson
Download or read book Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) written by Kerry Ryan Thompson and published by . This book was released on 2017 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or overall functioning (American Psychiatric Association, 2013). The ongoing care and assistance for children with ASD from their caregivers is vital to help them achieve and maintain optimal quality of life. Given the pervasive needs of children with ASD, caregivers have a unique role in providing for their child, as compared to caregivers of children without disabilities. The present study explored the caregiver in a family with a child with ASD. Applying a family systems perspective, Bishop's (2005a, 2005b) Disability Centrality Model constructs (i.e. role impact, relationship satisfaction, mastery) were used to explain caregiver and family quality of life. In addition, family quality of life was measured in such a way to incorporate Bishop's idea of centrality, or the importance an individual places on certain areas of life. A three-step statistical analysis was completed in order to better measure this conceptualization. This study included 204 caregivers who met the criteria for the study (i.e., caregiver of a child with ASD under the age of 18; self-reported reading level of 6th grade or above). Hayes' regression based path-analytic framework, PROCESS v2.16 was used to determine the explained variance of caregiver and family quality of life. In addition, correlational and moderation analyses were tested. Results suggested that the caregiver's perceived quality of life is positively correlated with the caregiver's perceived family quality of life. In addition, results indicated that the proposed path analyses explained 52.3% of the variance in caregiver quality of life, 44.4% variance for the weighted family quality of life model, and between 23.1-45.2% variance in the five-individual family quality of life-satisfaction domains (i.e, family interaction, parenting, emotional well-being, physical/material well-being, disability-related support). Finally, to better understand the impact of importance on quality of life, a three-step statistical analysis found that importance was significant when used as a weighted measurement of family quality of life that took the importance and satisfaction in consideration in their relation to one another; however, importance was not significant as a moderator between the relationship of caregiver relationship satisfaction and family quality of life. The findings in this study expand the current literature on caregivers of children with ASD, caregiver quality of life, and family quality of life. In addition, this study demonstrated the viability of strengths-based models of caregiver and family quality of life using Disability Centrality Model constructs through a family systems perspective for a sample of caregivers of children with ASD. Future implications for rehabilitation research and practice are discussed.
Book Synopsis Family Predictors of Quality of Life and Child Problem Behavior in Families of Young Children with Autism Spectrum Disorders by : Samara Pulver Tetenbaum
Download or read book Family Predictors of Quality of Life and Child Problem Behavior in Families of Young Children with Autism Spectrum Disorders written by Samara Pulver Tetenbaum and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan by : Hsiu-Shuo Hu
Download or read book The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan written by Hsiu-Shuo Hu and published by . This book was released on 2008 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Predictors of the Health-related Quality of Life and Family Quality of Life in Preschool Children with Autism Spectrum Disorders and Families by : 莊宜靜
Download or read book Predictors of the Health-related Quality of Life and Family Quality of Life in Preschool Children with Autism Spectrum Disorders and Families written by 莊宜靜 and published by . This book was released on 2014 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation by : Trent D. DesChamps
Download or read book Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation written by Trent D. DesChamps and published by . This book was released on 2019 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt: Robust findings demonstrate that parents of children with autism spectrum disorder (ASD) experience high levels of parenting stress that are related to negative outcomes for families. Although the majority of research on parenting stress has focused on parents of children with a current ASD diagnosis, parents of young children with concerns about ASD-related behaviors also face many unique challenges before the child receives a formal ASD diagnostic evaluation. However, no study to date has examined patterns of parenting stress among parents of children with ASD concerns prior to a formal ASD diagnosis. Therefore, the current study investigated longitudinal trajectories of parenting stress among parents of young children with ASD concerns compared to parents of children with non-ASD developmental concerns (e.g., language delay), and parents of children with no developmental concerns. Known predictors of parenting stress were also examined. Results revealed that parents of children with ASD concerns experienced consistently higher levels of parenting stress across early child development compared to parents of children with non-ASD developmental concerns and children with no concerns. Additionally, parenting efficacy, parent psychological functioning, parent social quality of life, and child social communication behaviors predicted levels of parenting stress for all parents.
Book Synopsis Relationships and Predictions of Marital Quality and Stress Among African American Parents of Children with and Without Autism Spectrum Disorder by : Sharese M. Martin
Download or read book Relationships and Predictions of Marital Quality and Stress Among African American Parents of Children with and Without Autism Spectrum Disorder written by Sharese M. Martin and published by . This book was released on 2016 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD), the most rapidly growing childhood disability in America, affects people of all ethnicities, social classes, and genders. Autism spectrum disorder (ASD) not only impacts the person who is diagnosed, but the entire family system. For instance, parenting a child with ASD has been linked with elevated parental stress and decreased marital quality. Although ASD awareness has recently increased, research is lacking in non-dominant populations such as African Americans. This study addresses the gaps in literature pertaining to African American parents of children with ASD. The purpose of this study was to examine the relationships and predictions of marital quality and stress among African American parents of children with and without ASD. Pearson’s chi-squares, Fisher’s exact tests, and binary logistic regressions were employed as statistical analyses for investigating the data from the 2011-2012 National Survey of Children’s Health (NSCH) (CAHMI, 2012c). According to the findings, a statistically significant relationship occurred in divorce rates between 65,115 Caucasian parents of children with and without ASD. However, there was not a statistically significant relationship in divorce rates between the 7,085 African American parents of children with and without ASD. Likewise, results indicated no statistical significant relationships existed between 3,548 married African American parents of children with and without ASD and marital quality. Findings also revealed no statistical significant relationship among 48 African American parents of children with ASD, children’s levels of ASD severity, and parents’ marital quality. Parent-related and child-related stressors were used to predict membership of parents with children and without ASD. Using logistic regression analysis with 693 participants, the largest statistically significant predictors for having a child with ASD were child-related stressors including (a) increased needs and demands and (b) child’s problems. The next largest statistically significant predictors for a parent having a child with ASD (n = 3,587) were parent-related stressors including (a) coping and perceived challenges and (b) health care access and quality. Limitations of the current study, clinical implications, and directions for future research were discussed.
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Book Synopsis Predictors of Better Health Outcomes of Mothers of Children with Autistic Spectrum Disorder by : Paula S. Hutchinson
Download or read book Predictors of Better Health Outcomes of Mothers of Children with Autistic Spectrum Disorder written by Paula S. Hutchinson and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Autism written by Michael Fitzgerald and published by BoD – Books on Demand. This book was released on 2017-04-12 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book opens with a discussion of neurodiversity and an elaboration of the diagnosis of autism. It then examines factors correlating with autism, including sex bias, month of birth, migration and impact of infant feeding. The next section is on the impact of autism. The neurobiology and genetic section deals with epigenetics and intracellular pathways associated with etiology. The development and behaviour section deals with proprioceptive profiles and joint attention in autism. The final section focuses on interventions including mindfulness, animal assisted activity, social/cultural perspective on autism intervention and physical activity. The book is relevant to all professionals and researchers working with persons with autism, including psychiatrists/psychologists, speech and language therapists, occupational therapists, teachers, nurses and care workers.
Book Synopsis Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder by : Dawn M. Turnage
Download or read book Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder written by Dawn M. Turnage and published by . This book was released on 2019 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keywords: Stress, Coping, Autism Spectrum Disorder, Caregiver
Book Synopsis The Effects of Autism on the Family by : Eric Schopler
Download or read book The Effects of Autism on the Family written by Eric Schopler and published by Springer Science & Business Media. This book was released on 2013-06-29 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the oldest statewide program serving autistic people in the United States, North Carolina's Division TEACCH (Treatment and Education of Autistic and related Communication handicapped CHildren) has had a major impact on ser vices for these people and their families. As we move into our second decade, we are frequently questioned about all aspects of our procedures, techniques, and program. Of all the questions that are asked, however, the one that comes up most frequently and seems to set our program apart from others concerns the ways in which we work with families. To help answer this question we identified what we have found to be the major components in our parent-professional relationships, and we elaborate on these with the most current research informa tion, clinical insights, and community knowledge available through the expertise of our distinguished contributors. Our purpose was to collect the most recent information and to organize the resulting volume along the outlines of the par ent-professional relationship found most important in the TEACCH program. Thus, the four main sections of the book include these four major ways profes sionals work with parents: as their advocates, their trainers, their trainees, and their reciprocal emotional support source. To the extent this effort was success ful, we acknowledge that it is easier to organize book chapters along these dimensions than it is to provide their implementation in the field.
