Families With Disabled Children

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Parenting Matters

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309388570
Total Pages : 525 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Special Children, Challenged Parents

Author : Robert A. Naseef
Publisher : Brookes Publishing Company
ISBN 13 :
Total Pages : 324 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Special Children, Challenged Parents by : Robert A. Naseef

Download or read book Special Children, Challenged Parents written by Robert A. Naseef and published by Brookes Publishing Company. This book was released on 2001 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.

Families Raising Disabled Children

Author : J. McLaughlin
Publisher : Springer
ISBN 13 : 0230583512
Total Pages : 228 pages
Book Rating : 4.2/5 (35 download)

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Book Synopsis Families Raising Disabled Children by : J. McLaughlin

Download or read book Families Raising Disabled Children written by J. McLaughlin and published by Springer. This book was released on 2008-10-10 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing upon qualitative material from parents and professionals, including ethnography, narrative inquiry, interviews and focus groups, this book brings together feminist and critical disability studies theories.

Far From the Tree

Author : Andrew Solomon
Publisher : Simon and Schuster
ISBN 13 : 0743236726
Total Pages : 976 pages
Book Rating : 4.7/5 (432 download)

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Book Synopsis Far From the Tree by : Andrew Solomon

Download or read book Far From the Tree written by Andrew Solomon and published by Simon and Schuster. This book was released on 2012 with total page 976 pages. Available in PDF, EPUB and Kindle. Book excerpt: The National Book Award-winning author of The Noonday Demon explores the consequences of extreme personal differences between parents and children, describing his own experiences as a gay child of straight parents while evaluating the circumstances of people affected by physical, developmental or cultural factors that divide families. 150,000 first printing.

Brothers and Sisters of Disabled Children

Author : Peter Burke
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781843100430
Total Pages : 166 pages
Book Rating : 4.1/5 (4 download)

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Book Synopsis Brothers and Sisters of Disabled Children by : Peter Burke

Download or read book Brothers and Sisters of Disabled Children written by Peter Burke and published by Jessica Kingsley Publishers. This book was released on 2004 with total page 166 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, this book details the experiences of these children and explores what it means to them to have a disabled brother or sister. The author makes clear recommendations for future practice.

Mental Disorders and Disabilities Among Low-Income Children

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309376882
Total Pages : 472 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Mental Disorders and Disabilities Among Low-Income Children by : National Academies of Sciences, Engineering, and Medicine

Download or read book Mental Disorders and Disabilities Among Low-Income Children written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-10-28 with total page 472 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.

You Will Dream New Dreams

Author : Stanley D. Klein
Publisher : Kensington Books
ISBN 13 : 1575665603
Total Pages : 294 pages
Book Rating : 4.5/5 (756 download)

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Book Synopsis You Will Dream New Dreams by : Stanley D. Klein

Download or read book You Will Dream New Dreams written by Stanley D. Klein and published by Kensington Books. This book was released on 2001-01-01 with total page 294 pages. Available in PDF, EPUB and Kindle. Book excerpt: A collection of personal writings from parents of children with disabilities shares how they were able to cope, survive, heal, and eventually rediscover happiness, and provides messages of encouragement for parents facing the same challenges.

Different Dads

Author : Jill Harrison
Publisher : Jessica Kingsley Publishers
ISBN 13 : 1843104547
Total Pages : 177 pages
Book Rating : 4.8/5 (431 download)

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Book Synopsis Different Dads by : Jill Harrison

Download or read book Different Dads written by Jill Harrison and published by Jessica Kingsley Publishers. This book was released on 2007 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fathers of disabled children can feel overlooked when the focus of much parenting support is aimed at mothers. Different Dads is a collection of inspiring personal testimonies written by fathers of children with a disability who reflect on their own experiences and offer advice to other fathers and families on the challenges of raising a child with a disability. The fathers featured represent a broad spectrum of experience. Their contributions reflect a wide range of cultures; some are single fathers, others are married adoptive fathers. What they all have in common are the challenges that face them and their families in raising a child with a disability. Issues explored include the reactions of family, friends and colleagues, how to deal with the organisations and professionals that support families with a disabled child, and the difficulty of being open about feelings in a culture that doesn't always expect men to have a sensitive or nurturing role. Offering direct and thoughtful perspectives on being a father of a child with a disability, this book will be a valuable source of support and information for families with disabled children, and also for health and social care professionals who work with these families.

Children of Disabled Parents

Author : Tony Newman
Publisher : Russell House Publishing Limited
ISBN 13 : 9781903855201
Total Pages : 0 pages
Book Rating : 4.8/5 (552 download)

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Book Synopsis Children of Disabled Parents by : Tony Newman

Download or read book Children of Disabled Parents written by Tony Newman and published by Russell House Publishing Limited. This book was released on 2003 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text explores the impact of parental disability on children, especially where lack of support to families results in significant restrictions to children's day to day lives. It reviews the literature on parental disability and its impact on children; considers why concern for the children of disabled parents has emerged at this particular juncture of history; explores whether the presence of parental disability affects the self-reported health and well-being of children; discusses how children's strengths as well as their vulnerabilities can be identified and promoted; and suggests how more effective social care services can be delivered to children in families affected by disability or chronic illness.

Disabled Village Children

Author : David Werner
Publisher :
ISBN 13 :
Total Pages : 680 pages
Book Rating : 4.E/5 ( download)

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Book Synopsis Disabled Village Children by : David Werner

Download or read book Disabled Village Children written by David Werner and published by . This book was released on 1987 with total page 680 pages. Available in PDF, EPUB and Kindle. Book excerpt: ... A book of information and ideas for all who are concerned about the well-being of disabled children. It is especially for those who live in rural areas where resources are limited ... Written by [the author] with the help of disabled persons and pioneers in rehabilitation in many countries, this book ... gives a wealth of clear, simple, but detailed information concerning most common disabilities of children: many different physical disabilities, blindness, deafness, fits, behavior problems, and developmental delay. It gives suggestions for simplified rehabilitation, low-cost aids, and ways to help disabled children find a role and be accepted in the community. Above all, the book helps us to realize that most of the answers for meeting these children's needs can be found within the community, the family, and in the children themselves. It discusses ways of starting small community rehabilitation centers and workshops run by disabled persons or the families of disabled children.-Back cover.

Day by Day

Author : JOANNA. GRIFFIN
Publisher : Free Publishing Limited
ISBN 13 : 9781911383536
Total Pages : 300 pages
Book Rating : 4.3/5 (835 download)

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Book Synopsis Day by Day by : JOANNA. GRIFFIN

Download or read book Day by Day written by JOANNA. GRIFFIN and published by Free Publishing Limited. This book was released on 2021-05-07 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: The impact of finding out your child is disabled can be wide ranging. The author's experience as a psychologist and parent of a disabled child informs this book which focuses on what helps, and hinders, parent-carers' emotional wellbeing. Research shows that mental health, relationships, family life, access to work and leisure activities, as well as finances can all be affected. For many parents the focus of those around them is solely on the child and their own needs become neglected. The author re-focuses attention onto the wellbeing of the parent. This includes acknowledging emotions, connecting with positive others, empowering yourself, regularly engaging in self-care and finding your own sense of meaning and purpose in life. Identifying the myriad of different emotions parents may experience as an understandable reaction to an unexpected situation the book includes quotes from parent carers. Connecting to psychological theories, such as positive re-framing and post-traumatic growth, the book applies these in practical ways to the parent-carer experience. She acknowledges that the journey is neither linear nor simple and transitions such as secondary school, puberty and adulthood require further periods of adjustment. Parents rarely get the time or support to stop and reflect on how they are feeling as they are caught up in the day to day busyness of caring. The difficulty is exacerbated by limited resources and battling for services.

Perfect

Author : Nicola Davies
Publisher :
ISBN 13 : 9781912213498
Total Pages : 0 pages
Book Rating : 4.2/5 (134 download)

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Book Synopsis Perfect by : Nicola Davies

Download or read book Perfect written by Nicola Davies and published by . This book was released on 2018-07-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of a boy who struggles to accept his new born sister, when she is not what he expected. But the swifts which swoop over his home help to show him that she is truly perfect. 'Perfect' is a remarkable story about anticipation and disappointment, acceptance and love, and the power of nature in all our lives.

Riding the Bus with My Sister

Author : Rachel Simon
Publisher : HMH
ISBN 13 : 0547344848
Total Pages : 352 pages
Book Rating : 4.5/5 (473 download)

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Book Synopsis Riding the Bus with My Sister by : Rachel Simon

Download or read book Riding the Bus with My Sister written by Rachel Simon and published by HMH. This book was released on 2013-03-05 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: A “heartwarming, life-affirming” memoir of a relationship with an intellectually disabled sibling: “Read this book. It might just change your life” (Boston Herald). Beth is a spirited woman with an intellectual disability who lives intensely and often joyfully, and spends most of her days riding the buses in Pennsylvania. The drivers, a lively group, are her mentors; her fellow passengers, her community—though some display less patience or kindness than others. Her sister, Rachel, a teacher and writer, camouflages her emotional isolation by leading a hyperbusy life. But one day, Beth asks Rachel to accompany her on public transportation for an entire year—and Rachel accepts. This wise, funny, deeply affecting book is the chronicle of that remarkable time, as Rachel learns how to live in the moment, how to pay attention to what really matters, how to change, how to love—and how to slow down and enjoy the ride. Weaving in anecdotes and memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness, Rachel Simon brings to light a world that is almost invisible to many people, finds unlikely heroes in everyday life, and, without sentimentality, wrestles with her own limitations and portrays Beth as the endearing, feisty, independent person she is. “With tenderness and fury, heartbreak and acceptance . . . Simon comes to the inescapable conclusion that we are all riders on the bus, and on the bus we are all the same.” —Jacquelyn Mitchard, author of The Deep End of the Ocean

Opportunities for Improving Programs and Services for Children with Disabilities

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309472245
Total Pages : 351 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Opportunities for Improving Programs and Services for Children with Disabilities by : National Academies of Sciences, Engineering, and Medicine

Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Disability and Psychology

Author : Dan Goodley
Publisher : Bloomsbury Publishing
ISBN 13 : 1350312142
Total Pages : 206 pages
Book Rating : 4.3/5 (53 download)

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Book Synopsis Disability and Psychology by : Dan Goodley

Download or read book Disability and Psychology written by Dan Goodley and published by Bloomsbury Publishing. This book was released on 2005-10-30 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: Disability is not just the physical, sensory or intellectual impairments a person has, but the exclusion from society they face as a result. Organisations for disabled people are a growing voice in challenging this exclusion and anti-discrimination legislation is helping to change the structures in society that have contributed to it. This book examines the discipline of psychology in this regard. It argues that psychology has tended to ignore the socio-cultural aspects of disability and treat disabled people as objects rather than arbiters of psychological intervention. Bringing together disabled and non-disabled researchers and psychologists, this book proposes ideas for an enabling psychological theory and practice, and addresses questions such as: -"How can we support the inclusion of disabled children?" - "Can therapy enable rather than pathologise?” - "What can be learnt from the experience of disabled psychologists?" "How can psychology contribute to social models of disability?” In examining these issues, this volume challenges the reader to reconsider the relationship between disability studies and psychology and to do so in ways that contribute to the emancipation - rather than the exclusion - of disabled people. A key text for students on relevant courses within disability studies and psychology degrees, this book is also an important resource for those who study or work in the areas of healthcare studies, nursing, sociology and social work. Dan Goodley is a Reader in disability studies, University of Sheffield, with research interests in disability theory, activism and methodology. Rebecca Lawthom is Principal Lecturer in psychology, Manchester Metropolitan University and a member of the Research Institute for Health and Social Change. Her research interests are in disability, community and feminist psychology.

The Views and Experiences of Disabled Children and Their Siblings

Author : Clare Connors
Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781843101277
Total Pages : 192 pages
Book Rating : 4.1/5 (12 download)

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Book Synopsis The Views and Experiences of Disabled Children and Their Siblings by : Clare Connors

Download or read book The Views and Experiences of Disabled Children and Their Siblings written by Clare Connors and published by Jessica Kingsley Publishers. This book was released on 2003 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: The authors explore the implications of their study for a childhood model of social disability. They identify and draw out the significance of their findings for a range of mainstream, specialist and statutory providers. It is an invaluable resource for effective ways of communicating directly with disabled children.

A Different Kind of Perfect

Author : Cindy Dowling
Publisher : Shambhala Publications
ISBN 13 : 9780834826106
Total Pages : 288 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis A Different Kind of Perfect by : Cindy Dowling

Download or read book A Different Kind of Perfect written by Cindy Dowling and published by Shambhala Publications. This book was released on 2006-09-12 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Every parent dreams of having a happy, healthy child. What happens when these dreams are shattered by a physical or cognitive disability? A Different Kind of Perfect offers comfort, consolation, and wisdom from parents who have been there—and are finding their way through. The writings collected here are grouped into chapters reflecting the progressive stages of many parents' emotional journeys, starting with grief, denial, and anger and moving towards acceptance, empowerment, laughter, and even joy. Each chapter opens with an introduction by Neil Nicoll, a child and family psychologist who specializes in development disorders.