European Data Protection In Good Health

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European Data Protection: In Good Health?

Author : Serge Gutwirth
Publisher : Springer Science & Business Media
ISBN 13 : 9400729030
Total Pages : 368 pages
Book Rating : 4.4/5 (7 download)

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Book Synopsis European Data Protection: In Good Health? by : Serge Gutwirth

Download or read book European Data Protection: In Good Health? written by Serge Gutwirth and published by Springer Science & Business Media. This book was released on 2012-02-22 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although Europe has a significant legal data protection framework, built up around EU Directive 95/46/EC and the Charter of Fundamental Rights, the question of whether data protection and its legal framework are ‘in good health’ is increasingly being posed. Advanced technologies raise fundamental issues regarding key concepts of data protection. Falling storage prices, increasing chips performance, the fact that technology is becoming increasingly embedded and ubiquitous, the convergence of technologies and other technological developments are broadening the scope and possibilities of applications rapidly. Society however, is also changing, affecting the privacy and data protection landscape. The ‘demand’ for free services, security, convenience, governance, etc, changes the mindsets of all the stakeholders involved. Privacy is being proclaimed dead or at least worthy of dying by the captains of industry; governments and policy makers are having to manoeuvre between competing and incompatible aims; and citizens and customers are considered to be indifferent. In the year in which the plans for the revision of the Data Protection Directive will be revealed, the current volume brings together a number of chapters highlighting issues, describing and discussing practices, and offering conceptual analysis of core concepts within the domain of privacy and data protection. The book’s first part focuses on surveillance, profiling and prediction; the second on regulation, enforcement, and security; and the third on some of the fundamental concepts in the area of privacy and data protection. Reading the various chapters it appears that the ‘patient’ needs to be cured of quite some weak spots, illnesses and malformations. European data protection is at a turning point and the new challenges are not only accentuating the existing flaws and the anticipated difficulties, but also, more positively, the merits and the need for strong and accurate data protection practices and rules in Europe, and elsewhere.

Health Data Pools Under European Data Protection and Competition Law

Author : Giulia Schneider
Publisher : Springer Nature
ISBN 13 : 3030954277
Total Pages : 388 pages
Book Rating : 4.0/5 (39 download)

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Book Synopsis Health Data Pools Under European Data Protection and Competition Law by : Giulia Schneider

Download or read book Health Data Pools Under European Data Protection and Competition Law written by Giulia Schneider and published by Springer Nature. This book was released on 2022-04-13 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the emerging economic reality of health data pools from the perspective of European Union policy and law. The contractual sharing of health data for research purposes is giving rise to a free movement of research data, which is strongly encouraged at European policy level within the Digital Single Market Strategy. However, it has also a strong impact on data subjects' fundamental right to data protection and smaller businesses and research entities ability to carry out research and compete in innovation markets. Accordingly the work questions under which conditions health data sharing is lawful under European data protection and competition law. For these purposes, the work addresses the following sub-questions: i) which is the emerging innovation paradigm in digital health research?; ii) how are health data pools addressed at European policy level?; iii) do European data protection and competition law promote health data-driven innovation objectives, and how?; iv) which are the limits posed by the two frameworks to the free pooling of health data? The underlying assumption of the work is that both branches of European Union law are key regulatory tools for the creation of a common European health data space as envisaged in the Commissions 2020 European strategy for data. It thus demonstrates that both European data protection law, as defined under the General Data Protection Regulation, and European competition law and policy set research enabling regimes regarding health data, provided specific normative conditions are met. From a further perspective, both regulatory frameworks place external limits to the freedom to share (or not share) research valuable data.

Handbook on European data protection law

Author : Council of Europe
Publisher : Council of Europe
ISBN 13 : 9287198497
Total Pages : 402 pages
Book Rating : 4.2/5 (871 download)

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Book Synopsis Handbook on European data protection law by : Council of Europe

Download or read book Handbook on European data protection law written by Council of Europe and published by Council of Europe. This book was released on 2018-04-15 with total page 402 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rapid development of information technology has exacerbated the need for robust personal data protection, the right to which is safeguarded by both European Union (EU) and Council of Europe (CoE) instruments. Safeguarding this important right entails new and significant challenges as technological advances expand the frontiers of areas such as surveillance, communication interception and data storage. This handbook is designed to familiarise legal practitioners not specialised in data protection with this emerging area of the law. It provides an overview of the EU’s and the CoE’s applicable legal frameworks. It also explains key case law, summarising major rulings of both the Court of Justice of the European Union and the European Court of Human Rights. In addition, it presents hypothetical scenarios that serve as practical illustrations of the diverse issues encountered in this ever-evolving field.

European Data Protection Law

Author : European Union
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781533170835
Total Pages : 130 pages
Book Rating : 4.1/5 (78 download)

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Book Synopsis European Data Protection Law by : European Union

Download or read book European Data Protection Law written by European Union and published by Createspace Independent Publishing Platform. This book was released on 2016-05-04 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains the General Data Protection Regulation 2016 with official justifications. Legal provisions are accompanied by their recitals. Ideal for any practitioner and anyone interested in European data privacy. "The General Data Protection Regulation is the first directly applicable legal basis valid in all EU member states for processing personal data. It was concluded in April 2016 following a three-year coordination procedure, and replaces the data protection directive from 1995. The updates in the regulation include rights related to data portability and the right to be forgotten. There are changes with regard to data transmission to third-party countries, national supervisory agencies ("one-stop-shops") and their collaboration. But above all, the drastically harsher sanctions in response to violations should be an impetus for all affected companies to review their compliance measures. The European Parliament and the Council have granted a transitional deadline of two years for this purpose."

Fundamentals of Clinical Data Science

Author : Pieter Kubben
Publisher : Springer
ISBN 13 : 3319997130
Total Pages : 219 pages
Book Rating : 4.3/5 (199 download)

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Book Synopsis Fundamentals of Clinical Data Science by : Pieter Kubben

Download or read book Fundamentals of Clinical Data Science written by Pieter Kubben and published by Springer. This book was released on 2018-12-21 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.

Health Data Privacy under the GDPR

Author : Maria Tzanou
Publisher : Routledge
ISBN 13 : 0429663846
Total Pages : 171 pages
Book Rating : 4.4/5 (296 download)

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Book Synopsis Health Data Privacy under the GDPR by : Maria Tzanou

Download or read book Health Data Privacy under the GDPR written by Maria Tzanou and published by Routledge. This book was released on 2020-11-23 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity. This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children’s health and academic research? By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law.

Reforming European Data Protection Law

Author : Serge Gutwirth
Publisher : Springer
ISBN 13 : 9401793859
Total Pages : 409 pages
Book Rating : 4.4/5 (17 download)

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Book Synopsis Reforming European Data Protection Law by : Serge Gutwirth

Download or read book Reforming European Data Protection Law written by Serge Gutwirth and published by Springer. This book was released on 2014-11-17 with total page 409 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book on privacy and data protection offers readers conceptual analysis as well as thoughtful discussion of issues, practices, and solutions. It features results of the seventh annual International Conference on Computers, Privacy, and Data Protection, CPDP 2014, held in Brussels January 2014. The book first examines profiling, a persistent core issue of data protection and privacy. It covers the emergence of profiling technologies, on-line behavioral tracking, and the impact of profiling on fundamental rights and values. Next, the book looks at preventing privacy risks and harms through impact assessments. It contains discussions on the tools and methodologies for impact assessments as well as case studies. The book then goes on to cover the purported trade-off between privacy and security, ways to support privacy and data protection, and the controversial right to be forgotten, which offers individuals a means to oppose the often persistent digital memory of the web. Written during the process of the fundamental revision of the current EU data protection law by the Data Protection Package proposed by the European Commission, this interdisciplinary book presents both daring and prospective approaches. It will serve as an insightful resource for readers with an interest in privacy and data protection.

European Data Protection, Third Edition

Author : Eduardo Ustaran
Publisher :
ISBN 13 : 9781948771719
Total Pages : 0 pages
Book Rating : 4.7/5 (717 download)

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Book Synopsis European Data Protection, Third Edition by : Eduardo Ustaran

Download or read book European Data Protection, Third Edition written by Eduardo Ustaran and published by . This book was released on 2022-12 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Regulation of Privacy and Data Protection in the Use of Electronic Health Information

Author : Roberto J. Rodrigues
Publisher : Pan American Health Org
ISBN 13 : 9275123853
Total Pages : 230 pages
Book Rating : 4.2/5 (751 download)

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Book Synopsis The Regulation of Privacy and Data Protection in the Use of Electronic Health Information by : Roberto J. Rodrigues

Download or read book The Regulation of Privacy and Data Protection in the Use of Electronic Health Information written by Roberto J. Rodrigues and published by Pan American Health Org. This book was released on 2001 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, written by experts from PAHO, the European Commission, and the East Caroline University School of Medicine, review the fundamental concepts related to the technical and legal aspects of data protection and summarize the scope and degree of impl

Handbook Integrated Care

Author : Volker Amelung
Publisher : Springer
ISBN 13 : 3319561030
Total Pages : 578 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis Handbook Integrated Care by : Volker Amelung

Download or read book Handbook Integrated Care written by Volker Amelung and published by Springer. This book was released on 2017-06-30 with total page 578 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook gives profound insight into the main ideas and concepts of integrated care. It offers a managed care perspective with a focus on patient orientation, efficiency, and quality by applying widely recognized management approaches to the field of health care. The handbook also provides international best practices and shows how integrated care does work throughout various health systems. The delivery of health and social care is characterised by fragmentation and complexity in most health systems throughout the world. Therefore, much of the recent international discussion in the field of health policy and health management has focused on the topic of integrated care. “Integrated” acknowledges the complexity of patients ́ needs and aims to meet it by taking into account both health and social care aspects. Changing and improving processes in a coordinated way is at the heart of this approach.

GDPR and Biobanking

Author : Jane Reichel
Publisher : Springer Nature
ISBN 13 : 3030493881
Total Pages : 432 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis GDPR and Biobanking by : Jane Reichel

Download or read book GDPR and Biobanking written by Jane Reichel and published by Springer Nature. This book was released on 2021 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research -- A Pan-European analysis of Article 89 implementation and national biobank research regulations -- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations -- Part III National insights in biobank regulatory frameworks -- Selected 10-15 countries for reports: Germany -- Greece -- France -- Finland -- Sweden -- United Kingdom -- Part IV Conclusions -- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward. .

Privacy and Healthcare Data

Author : Christina Munns
Publisher : Taylor & Francis
ISBN 13 : 1317075722
Total Pages : 364 pages
Book Rating : 4.3/5 (17 download)

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Book Synopsis Privacy and Healthcare Data by : Christina Munns

Download or read book Privacy and Healthcare Data written by Christina Munns and published by Taylor & Francis. This book was released on 2017-05-15 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: In order for the information society to realise its full potential, personal data has to be disclosed, used and often shared. This book explores the disclosure and sharing of data within the area of healthcare. Including an overview of how health information is currently managed, the authors argue that with changes in modern society, the idea of personal relationships with a local GP who solely holds and controls your health records is becoming rapidly outdated. The authors aim to encourage and empower patients to make informed choices about sharing their health data. They do this by developing a three-stage theoretical model for change to the roles of the NHS and the individual. The study generates debate to stimulate and inspire new models and policy, and to provoke new visions for the sharing of healthcare data. Such discussion is framed through an exploration of the changing concept of 'privacy' and 'patient control' in healthcare information management. The volume draws on best practices from Europe and the USA and combines these to form a suggested vision for the UK as an early adopter of change. The volume will be essential reading for academics in the field of privacy and data protection, as well as healthcare and informatics professionals across different jurisdictions.

The EU General Data Protection Regulation (GDPR)

Author : Paul Voigt
Publisher : Springer
ISBN 13 : 3319579592
Total Pages : 385 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis The EU General Data Protection Regulation (GDPR) by : Paul Voigt

Download or read book The EU General Data Protection Regulation (GDPR) written by Paul Voigt and published by Springer. This book was released on 2017-08-07 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides expert advice on the practical implementation of the European Union’s General Data Protection Regulation (GDPR) and systematically analyses its various provisions. Examples, tables, a checklist etc. showcase the practical consequences of the new legislation. The handbook examines the GDPR’s scope of application, the organizational and material requirements for data protection, the rights of data subjects, the role of the Supervisory Authorities, enforcement and fines under the GDPR, and national particularities. In addition, it supplies a brief outlook on the legal consequences for seminal data processing areas, such as Cloud Computing, Big Data and the Internet of Things.Adopted in 2016, the General Data Protection Regulation will come into force in May 2018. It provides for numerous new and intensified data protection obligations, as well as a significant increase in fines (up to 20 million euros). As a result, not only companies located within the European Union will have to change their approach to data security; due to the GDPR’s broad, transnational scope of application, it will affect numerous companies worldwide.

European Data Protection: Coming of Age

Author : Serge Gutwirth
Publisher : Springer
ISBN 13 : 9789400751842
Total Pages : 0 pages
Book Rating : 4.7/5 (518 download)

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Book Synopsis European Data Protection: Coming of Age by : Serge Gutwirth

Download or read book European Data Protection: Coming of Age written by Serge Gutwirth and published by Springer. This book was released on 2012-11-22 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: On 25 January 2012, the European Commission presented its long awaited new “Data protection package”. With this proposal for a drastic revision of the data protection framework in Europe, it is fair to say that we are witnessing a rebirth of European data protection, and perhaps, its passage from an impulsive youth to a more mature state. Technology advances rapidly and mobile devices are significantly changing the landscape. Increasingly, we carry powerful, connected, devices, whose location and activities can be monitored by various stakeholders. Very powerful social network sites emerged in the first half of last decade, processing personal data of many millions of users. Updating the regulatory network was imminent and the presentation of the new package will initiate a period of intense debate in which the proposals will be thoroughly commented upon and criticized, and numerous amendments will undoubtedly be proposed. This volume brings together some 19 chapters offering conceptual analyses, highlighting issues, proposing solutions, and discussing practices regarding privacy and data protection. In the first part of the book, conceptual analyses of concepts such as privacy and anonymity are provided. The second section focuses on the contrasted positions of digital natives and ageing users in the information society. The third section provides four chapters on privacy by design, including discussions on roadmapping and concrete techniques. The fourth section is devoted to surveillance and profiling, with illustrations from the domain of smart metering, self-surveillance and the benefits and risks of profiling. The book concludes with case studies pertaining to communicating privacy in organisations, the fate of a data protection supervisor in one of the EU member states and data protection in social network sites and online media. This volume brings together some 19 chapters offering conceptual analyses, highlighting issues, proposing solutions, and discussing practices regarding privacy and data protection. In the first part of the book, conceptual analyses of concepts such as privacy and anonymity are provided. The second section focuses on the contrasted positions of digital natives and ageing users in the information society. The third section provides four chapters on privacy by design, including discussions on roadmapping and concrete techniques. The fourth section is devoted to surveillance and profiling, with illustrations from the domain of smart metering, self-surveillance and the benefits and risks of profiling. The book concludes with case studies pertaining to communicating privacy in organisations, the fate of a data protection supervisor in one of the EU member states and data protection in social network sites and online media.

Understanding the New European Data Protection Rules

Author : Paul Lambert
Publisher : CRC Press
ISBN 13 : 1351630083
Total Pages : 498 pages
Book Rating : 4.3/5 (516 download)

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Book Synopsis Understanding the New European Data Protection Rules by : Paul Lambert

Download or read book Understanding the New European Data Protection Rules written by Paul Lambert and published by CRC Press. This book was released on 2017-09-20 with total page 498 pages. Available in PDF, EPUB and Kindle. Book excerpt: Compared to the US, European data and privacy protection rules seem Draconian. The European rules apply to any enterprise doing business in the EU. The new rules are far more stringent than the last set. This book is a quick guide to the directives for companies, particularly US, that have to comply with them. Where US organizations and businesses who collect or receive EU personal data fail to comply with the rule, the bottom line can suffer from very significant official fines and penalties, as well as from users, customers or representative bodies to pursuing litigation. This guide is essential for all US enterprises who directly or indirectly deal with EU personal data.

The Foundations of EU Data Protection Law

Author : Orla Lynskey
Publisher : Oxford University Press
ISBN 13 : 0191028061
Total Pages : 337 pages
Book Rating : 4.1/5 (91 download)

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Book Synopsis The Foundations of EU Data Protection Law by : Orla Lynskey

Download or read book The Foundations of EU Data Protection Law written by Orla Lynskey and published by Oxford University Press. This book was released on 2015-11-26 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nearly two decades after the EU first enacted data protection rules, key questions about the nature and scope of this EU policy, and the harms it seeks to prevent, remain unanswered. The inclusion of a Right to Data Protection in the EU Charter has increased the salience of these questions, which must be addressed in order to ensure the legitimacy, effectiveness and development of this Charter right and the EU data protection regime more generally. The Foundations of EU Data Protection Law is a timely and important work which sheds new light on this neglected area of law, challenging the widespread assumption that data protection is merely a subset of the right to privacy. By positioning EU data protection law within a comprehensive conceptual framework, it argues that data protection has evolved from a regulatory instrument into a fundamental right in the EU legal order and that this right grants individuals more control over more forms of data than the right to privacy. It suggests that this dimension of the right to data protection should be explicitly recognised, while identifying the practical and conceptual limits of individual control over personal data. At a time when EU data protection law is sitting firmly in the international spotlight, this book offers academics, policy-makers, and practitioners a coherent vision for the future of this key policy and fundamental right in the EU legal order, and how best to realise it.

Data Protection and Confidentiality in Health Informatics

Author : Commission of the European Communities
Publisher : Studies in Health Technology a
ISBN 13 : 9789051990522
Total Pages : 365 pages
Book Rating : 4.9/5 (95 download)

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Book Synopsis Data Protection and Confidentiality in Health Informatics by : Commission of the European Communities

Download or read book Data Protection and Confidentiality in Health Informatics written by Commission of the European Communities and published by Studies in Health Technology a. This book was released on 1991 with total page 365 pages. Available in PDF, EPUB and Kindle. Book excerpt: Title Page -- Preface -- Table of Contents -- EXECUTIVE SUMMARY -- The Individual, Society and the Protection of Personal Data -- The European Challenge in Health Information Systems -- Medical Requirements in Data Protection -- Data Protection in Nursing in Europe -- Data Protection in Nursing -- Evolution and Protection of the Health Care Record as a European Document -- A Survey of Legal Issues and Gaps in Legal Coverage in the EC -- Legal Aspects of Data Protection in Medical Informatics -- Data Protection Issues in Database Management and Expert Systems -- La Protection des Données Médicales Informatisées en France -- Benefits and Threats of New Technologies -- Safety Standards in Medical Software -- Medical Database Security -- Security in Medical Networks -- Data Protection in Networks -- Medical Network Security and Viruses -- User Authorization in Distributed Hospital Information Systems -- The Six Safety First Principles of Health Information Systems: A Programme of Implementation Part 1 Safety and Security -- Management and Staff Issues in Data Protection -- Practical Aspects of Handling Data Protection and Data Security -- Administrative Aspects of Data Protection -- Risk Analysis and Management -- List of Participants -- Author Index