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Author :
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (14 download)
Download or read book Ethical, Social and Legal Dimensions of Screening for Human Genetic Disease written by and published by . This book was released on 1974 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Society, Ethics, and the Life Sciences. Genetics Research Group
Publisher :
ISBN 13 :
Total Pages : 292 pages
Book Rating : 4.3/5 (91 download)
Download or read book Ethical, Social, and Legal Dimensions of Screening for Human Genetic Disease written by Institute of Society, Ethics, and the Life Sciences. Genetics Research Group and published by . This book was released on 1974 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :
Publisher :
ISBN 13 :
Total Pages : 272 pages
Book Rating : 4.:/5 (489 download)
Download or read book Ethical, Social and Legal Dimensions of Screening for Human Genetic Diseases written by and published by . This book was released on 1974 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309047986
Total Pages : 353 pages
Book Rating : 4.3/5 (9 download)
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Author : United States. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research
Publisher :
ISBN 13 :
Total Pages : 138 pages
Book Rating : 4.:/5 (31 download)
Download or read book Screening and Counseling for Genetic Conditions written by United States. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research and published by . This book was released on 1983 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A report on the ethical, social, and legal implications of genetic screening, counseling, and education programs."--T.p.
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309171431
Total Pages : 388 pages
Book Rating : 4.3/5 (91 download)
Download or read book Cells and Surveys written by National Research Council and published by National Academies Press. This book was released on 2001-01-19 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: What can social science, and demography in particular, reasonably expect to learn from biological information? There is increasing pressure for multipurpose household surveys to collect biological data along with the more familiar interviewer-respondent information. Given that recent technical developments have made it more feasible to collect biological information in non-clinical settings, those who fund, design, and analyze survey data need to think through the rationale and potential consequences. This is a concern that transcends national boundaries. Cells and Surveys addresses issues such as which biologic/genetic data should be collected in order to be most useful to a range of social scientists and whether amassing biological data has unintended side effects. The book also takes a look at the various ethical and legal concerns that such data collection entails.
Author : Samiran Nundy
Publisher : Springer Nature
ISBN 13 : 9811652481
Total Pages : 475 pages
Book Rating : 4.8/5 (116 download)
Download or read book How to Practice Academic Medicine and Publish from Developing Countries? written by Samiran Nundy and published by Springer Nature. This book was released on 2021-10-23 with total page 475 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an open access book. The book provides an overview of the state of research in developing countries – Africa, Latin America, and Asia (especially India) and why research and publications are important in these regions. It addresses budding but struggling academics in low and middle-income countries. It is written mainly by senior colleagues who have experienced and recognized the challenges with design, documentation, and publication of health research in the developing world. The book includes short chapters providing insight into planning research at the undergraduate or postgraduate level, issues related to research ethics, and conduct of clinical trials. It also serves as a guide towards establishing a research question and research methodology. It covers important concepts such as writing a paper, the submission process, dealing with rejection and revisions, and covers additional topics such as planning lectures and presentations. The book will be useful for graduates, postgraduates, teachers as well as physicians and practitioners all over the developing world who are interested in academic medicine and wish to do medical research.
Author : Daniel Bergsma
Publisher :
ISBN 13 :
Total Pages : 272 pages
Book Rating : 4.:/5 (61 download)
Download or read book Ethical, Social and Legal Dimensions of Genetic Disease written by Daniel Bergsma and published by . This book was released on 1974 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Bartha Maria Knoppers
Publisher : BRILL
ISBN 13 : 9047402936
Total Pages : 668 pages
Book Rating : 4.0/5 (474 download)
Download or read book Populations and Genetics written by Bartha Maria Knoppers and published by BRILL. This book was released on 2003-12-01 with total page 668 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.
Author : Dorothy C. Wertz
Publisher : Springer Science & Business Media
ISBN 13 : 9781402028809
Total Pages : 494 pages
Book Rating : 4.0/5 (288 download)
Download or read book Genetics and Ethics in Global Perspective written by Dorothy C. Wertz and published by Springer Science & Business Media. This book was released on 2004-11-04 with total page 494 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.
Author : Ruth F. Chadwick
Publisher : Springer Science & Business Media
ISBN 13 : 940159323X
Total Pages : 261 pages
Book Rating : 4.4/5 (15 download)
Download or read book The Ethics of Genetic Screening written by Ruth F. Chadwick and published by Springer Science & Business Media. This book was released on 2013-03-09 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection of essays represents the work produced in the course of a three-year project funded by the Commission of the European Communities under the Biomed I programme, on the ethics of genetic screening, entitled 'Genetic screening: ethical and philosophical perspectives, with special reference to multifactorial diseases'. The short title of the project was Euroscreen, thereafter known as Euroscreen I, in the light of the fact that a second project on genetic screening was subsequently funded. The project was multinational and multidisciplinary, and had as its objectives to examine the nature and extent of genetic screening programmes in different European countries; to analyse the social policy response to these developments in different countries; and to explore the applicability of normative ethical frameworks to the issues. The project was led by a core group who had oversight of the project and members of which have acted as editors for this volume. Darren Shickle edited the first section; Henk ten Have the second; Ruth Chadwick and Urban Wiesing the third and final part. The volume opens with an overview of genetic screening and the principles available for addressing developments in the field, with special reference to the Wilson and Jungner principles on screening. The first of the three major sections thereafter includes papers on the state of the art in different countries, together with some analysis of social context and policy.
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309184746
Total Pages : 101 pages
Book Rating : 4.3/5 (91 download)
Download or read book Evaluating Human Genetic Diversity written by National Research Council and published by National Academies Press. This book was released on 1998-01-19 with total page 101 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.
Author : Timothy A. Caulfield
Publisher : Springer Science & Business Media
ISBN 13 : 146154713X
Total Pages : 224 pages
Book Rating : 4.4/5 (615 download)
Download or read book The Commercialization of Genetic Research written by Timothy A. Caulfield and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rapid advances made in genetic research and technology over the last few decades have led to a host of important discoveries that have allowed for the detection (and hopefully soon the treatment) of a number of genetic conditions and diseases. Not surprisingly, these advances have also raised numerous ethical concerns about how result ing technologies will be implemented, and the impact they will have on different com munities. One particular concern is the enormous costs involved in conducting genetic research and the fact that the private sector has become heavily involved; the desire to commercialize the results and technology derived from genetic research is considered problematic. In September 1998, the Second International Conference on DNA Sampling, titled "The Commercialization of Genetic Research: Ethical, Legal and Policy Issues," was held of the conference, and of this book, was to in Edmonton, Alberta, Canada. The goal facilitate an interdisciplinary discussion of the legal, ethical, and policy implications arising from the commercialization of genetic research. We solicited contributions for the book from authors in fields as diverse as ethics, law, medicine, health policy, and the social sciences. The papers included, while based on presentations given at the conference, have been substantially expanded and enhanced by the commentary received and discussions held at the conference.
Author : Bernice Elger
Publisher : Routledge
ISBN 13 : 1317141466
Total Pages : 333 pages
Book Rating : 4.3/5 (171 download)
Download or read book Ethical Issues of Human Genetic Databases written by Bernice Elger and published by Routledge. This book was released on 2016-05-13 with total page 333 pages. Available in PDF, EPUB and Kindle. Book excerpt: Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.
Author : Bartha Maria Knoppers
Publisher : Cowansville : Éditions Yvon Blais
ISBN 13 :
Total Pages : 482 pages
Book Rating : 4.F/5 ( download)
Download or read book Socio-ethical Issues in Human Genetics written by Bartha Maria Knoppers and published by Cowansville : Éditions Yvon Blais. This book was released on 1998 with total page 482 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Michela Betta
Publisher : Springer Science & Business Media
ISBN 13 : 1402046197
Total Pages : 276 pages
Book Rating : 4.4/5 (2 download)
Download or read book The Moral, Social, and Commercial Imperatives of Genetic Testing and Screening written by Michela Betta and published by Springer Science & Business Media. This book was released on 2007-06-24 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the past people were classified as being healthy or sick. With genetic testing and screening, adults might be healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. Genetic testing and screening hits another dramatic note when cells and embryos are tested and subsequently altered to hit targets of perfection. This insightful book combines theory and social practice, drawing on a range of disciplines and presenting contrasting viewpoints.
Author : Bartha Maria Knoppers
Publisher : Martinus Nijhoff Publishers
ISBN 13 : 9789041103611
Total Pages : 486 pages
Book Rating : 4.1/5 (36 download)
Download or read book Human DNA written by Bartha Maria Knoppers and published by Martinus Nijhoff Publishers. This book was released on 1997-07-30 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Human DNA: Law and Policy" provides the first international debate on a topic of universal concern. No book has brought together such a diverse range of multidisciplinary ethical and legal expertise on the highly controversial issues surrounding the use, storage, exchange and sale of the very stuff' of which we are made - human genetic material. Testing of human genetic material involves a variety of samples (pathological samples, newborn screening samples, samples leftover' after testing, and research samples), shared around the world. This places consent issues on an individual, familial, and societal level. The comparative and international perspectives presented reveal the transnational nature of genetic studies. This book focuses on the issues of DNA sampling and testing, consent and confidentiality, banking policies, genetic epidemiology and diversity. Since financial and technological pressures are inextricably linked to human genetics research, commercialization and patents are also examined. Academic researchers, policy makers and industry will benefit from the learned papers and reports of the discussion, which is rich in diversity of opinion, controversial in the diversity of policy and approaches presented, anchored on scientific facts and yet sensitive to cultural, political and economic differences.
