Enhancing Health Information Gathering Experiences In Online Health Communities

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Enhancing Health Information-gathering Experiences in Online Health Communities

Author : Albert Park
Publisher :
ISBN 13 :
Total Pages : 125 pages
Book Rating : 4.:/5 (932 download)

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Book Synopsis Enhancing Health Information-gathering Experiences in Online Health Communities by : Albert Park

Download or read book Enhancing Health Information-gathering Experiences in Online Health Communities written by Albert Park and published by . This book was released on 2015 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: Online health communities can offer a range of diverse personal health expertise and experiences, yet gathering relevant health information is a significant challenge for members and researchers as each party faces different obstacles. For instance, members face challenges that pertain to text based computer-mediated communication (CMC) and information availability as determined by the active participation of other members. Similarly, the challenge of making sense of vast amounts of text prevents researchers from reaping the full benefits of the collective knowledge. In my dissertation, I examine the challenges of gathering health information from online health communities in two parts according to the respective stakeholders. I first address the challenge that patient members face during their time of interaction with the online community to gather information. Within the context of CMC in online health communities, I focus on issues associated with topic changes-topic drift-and sustainment of active participation-posting messages to participate in the communities. Next, I address the challenge of processing and making sense of a large amount of collective knowledge shared in online health communities. Within the context of patient-generated text in online cancer communities, I focus on the challenges of automatically understanding patient-generated text using existing natural language processing (NLP) tools. More specifically, my specific aims for this dissertation are: 1. Understand topic drift and its effect on gathering health information from online health communities 2. Understand the beneficial effects of vocabulary similarity-homophily of vocabulary usage-associated with active participation in online health communities 3. Understand the challenges of automatically processing online community text and automated methods to detect failures I examine these specific aims using two distinct online health communities: cancerconnect.com (a small, private online health community for patients with a wide range of cancers) and webmd.com (a large, public online health community with many non-cancer, disease-specific sub-communities). One of the most important findings I discovered is that many members of online communities are willing to go the extra mile to help others in similar situations. Yet, many challenges are hindering the experience of gathering health information from online health communities. Although these efforts leave a digital trace that is embedded with diverse personal health expertise and experiences, we still lack the capability to automatically utilize this invaluable information. I contribute to resolving the issues faced by members and researchers; thereby, maximizing the benefits of online health communities and improving the experience of gathering health information from them. I extend the existing knowledge related to topic drift, sustaining active participation, and processing patient-generated text with respect to the experience of gathering health information from online health communities.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Understanding and Using Health Experiences

Author : Sue Ziebland
Publisher : OUP Oxford
ISBN 13 : 0191643246
Total Pages : 234 pages
Book Rating : 4.1/5 (916 download)

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Book Synopsis Understanding and Using Health Experiences by : Sue Ziebland

Download or read book Understanding and Using Health Experiences written by Sue Ziebland and published by OUP Oxford. This book was released on 2013-04-04 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improving patient experience is a global priority for health policy-makers and care providers. The need to look at healthcare delivery through the eyes of patients is widely accepted, but how should it be done? What use can be made of this information, and what evidence is there that such exercises lead to better care? Understanding and Using Health Experiences: Improving patient care examines a broad range of different sources and techniques for gathering and analyzing health experiences. Providing an accessible and pragmatic overview of the diversity and richness of research in the field this book explores the strengths and limitations of different approaches, and assesses what each method can contribute to improving people's experience of illness, and the way that health services are delivered. The book looks at topics such as using focus groups to understand experiences of health and illness, patient surveys, and the internet as a source of information on people's experience. Using clear and engaging examples throughout, the book is accessibly written by experts in social science, health services, and health policy, and will be valuable to postgraduate students, healthcare practitioners, and individuals working in health and social policy, public sector management, and research.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 385 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Race, Ethnicity, and Language Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309140129
Total Pages : 286 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Race, Ethnicity, and Language Data by : Institute of Medicine

Download or read book Race, Ethnicity, and Language Data written by Institute of Medicine and published by National Academies Press. This book was released on 2009-12-30 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: The goal of eliminating disparities in health care in the United States remains elusive. Even as quality improves on specific measures, disparities often persist. Addressing these disparities must begin with the fundamental step of bringing the nature of the disparities and the groups at risk for those disparities to light by collecting health care quality information stratified by race, ethnicity and language data. Then attention can be focused on where interventions might be best applied, and on planning and evaluating those efforts to inform the development of policy and the application of resources. A lack of standardization of categories for race, ethnicity, and language data has been suggested as one obstacle to achieving more widespread collection and utilization of these data. Race, Ethnicity, and Language Data identifies current models for collecting and coding race, ethnicity, and language data; reviews challenges involved in obtaining these data, and makes recommendations for a nationally standardized approach for use in health care quality improvement.

The Value of Social Media for Patients

Author : Lu Yan
Publisher :
ISBN 13 :
Total Pages : 117 pages
Book Rating : 4.:/5 (855 download)

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Book Synopsis The Value of Social Media for Patients by : Lu Yan

Download or read book The Value of Social Media for Patients written by Lu Yan and published by . This book was released on 2012 with total page 117 pages. Available in PDF, EPUB and Kindle. Book excerpt: Social media are changing the way we learn about health and illness. Yet, there is limited information about whether online healthcare communities have a significant effect on patients' health conditions, as they do in healthcare communities in the offline world. To better understand what value social media bring to patients, research is needed to investigate this expanding phenomenon--patients joining OHCs and helping each other. In this dissertation, I conduct three studies to examine this increasingly important circumstance. In the first study I proposed a nonhomogeneous Partially Observed Markov Decision Process model to examine patients' health outcome dynamics related to their online activities. The Internet provides easier and greater access to health- and medical-related information than ever before. OHCs enhance this access by providing user-generated content about firsthand experiences and various social supports that patients need. The results indicate that patients receive benefits from learning from others, and participation in the online community helps patients improve their health conditions and better engage in the disease self-management process. Whereas the public accessibility of OHCs offers great promise for patients, it also carries the risk of information overload. In the second study, I propose a model that incorporates widely examined homophily features in offline social networking studies with endogenous online network measurements to examine network dynamics. I found that individuals' preference for communicating in the online social networking environment could be explained by network characteristics and their positions in the network. Although the Internet provides the opportunity for patients to access "more people like me" in a very fast and highly convenient way, it remains unknown how effective these online social interactions are in improving patients' health conditions. In the third study, I investigate how patients use information gleaned from others' shared experiences in the online healthcare communities. The results provide evidence for the existence of social contagion in OHCs, particularly in the areas of health information seeking and knowledge creation. In sum, these investigations provide evidence of the prominent role that social media are assuming in healthcare and raise important and promising questions for future research in this field.

The Internet and Health Communication

Author : Ronald E. Rice
Publisher : SAGE
ISBN 13 : 0761922334
Total Pages : 477 pages
Book Rating : 4.7/5 (619 download)

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Book Synopsis The Internet and Health Communication by : Ronald E. Rice

Download or read book The Internet and Health Communication written by Ronald E. Rice and published by SAGE. This book was released on 2001 with total page 477 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the popularity of the Internet, more and more people are turning to their computers for health information, advice, support and services. With its information based firmly on research, The Internet and Health Communication provides an in-depth analysis of the changes in human communication and health care resulting from the Internet revolution. Representing a wide range of expertise, the contributors provide an extensive variety of examples from the micro to the macro, including information about HMO web sites, Internet pharmacies, and web-enabled hospitals, to vividly illustrate their findings and conclusions.

Online Health Forums and Services: Benefits, Risks and Perspectives

Author : Rita Mano
Publisher : Bentham Science Publishers
ISBN 13 : 9811499632
Total Pages : 115 pages
Book Rating : 4.8/5 (114 download)

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Book Synopsis Online Health Forums and Services: Benefits, Risks and Perspectives by : Rita Mano

Download or read book Online Health Forums and Services: Benefits, Risks and Perspectives written by Rita Mano and published by Bentham Science Publishers. This book was released on 2021-02-22 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: The internet provides a major source of exchanging health information through online portals and new media. Internet users can access health sites and online forums to obtain health information. In turn, these information sources act as a catalyst for wellbeing and improving personal health care behaviors and routines. Competent health institutions encourage the development of these individual behaviors that enable individuals to increase health empowerment and to take responsibility for their own health needs, diagnosis and treatment. Online Health Forums and Services: Benefits, Risks and Perspectives is an investigation of the use of online health forums and services. The author first introduces the reader to the theories that define online social behaviors in terms of health care services. The chapters following this introduction attempt to account for the variations in online health care portal use and to what extent does social networking induce variations in health behaviors grounded in theory. A summary of media used for affecting health behavior change is also provided along with a discussion of the socioeconomic attributes of the individuals most likely to be affected in terms of their health behaviors. The book provides a comprehensive perspective that links the aspects of the micro-level use of the Internet for health purposes (accessing health related websites, participation in health forums and networking sites) to the macro level practices of telemedicine. Readers will be able to understand the social and health characteristics of the different groups of patients and estimate the extent to which individuals in need of health and medical information are taking advantage of the availability of information and communication platforms to improve their health, or if they are being left behind. This is a timely reference for healthcare professionals, researchers and consultants involved in digital health care initiatives and public health administration who are seeking information about how access to online health information can influence lifestyles in a way that impacts human behavior in a positive, meaningful way.

Methods in Medical Ethics

Author : Jeremy Sugarman MD, MPH, MA
Publisher : Georgetown University Press
ISBN 13 : 1589016238
Total Pages : 369 pages
Book Rating : 4.5/5 (89 download)

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Book Synopsis Methods in Medical Ethics by : Jeremy Sugarman MD, MPH, MA

Download or read book Methods in Medical Ethics written by Jeremy Sugarman MD, MPH, MA and published by Georgetown University Press. This book was released on 2010-10-15 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical ethics draws upon methods from a wide array of disciplines, including anthropology, economics, epidemiology, health services research, history, law, medicine, nursing, philosophy, psychology, sociology, and theology. In this influential book, outstanding scholars in medical ethics bring these many methods together in one place to be systematically described, critiqued, and challenged. Newly revised and updated chapters in this second edition include philosophy, religion and theology, virtue and professionalism, casuistry and clinical ethics, law, history, qualitative research, ethnography, quantitative surveys, experimental methods, and economics and decision science. This second edition also includes new chapters on literature and sociology, as well as a second chapter on philosophy which expands the range of philosophical methods discussed to include gender ethics, communitarianism, and discourse ethics. In each of these chapters, contributors provide descriptions of the methods, critiques, and notes on resources and training. Methods in Medical Ethics is a valuable resource for scholars, teachers, editors, and students in any of the disciplines that have contributed to the field. As a textbook and reference for graduate students and scholars in medical ethics, it offers a rich understanding of the complexities involved in the rigorous investigation of moral questions in medical practice and research.

Artificial Intelligence in Healthcare

Author : Adam Bohr
Publisher : Academic Press
ISBN 13 : 0128184396
Total Pages : 385 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Artificial Intelligence in Healthcare by : Adam Bohr

Download or read book Artificial Intelligence in Healthcare written by Adam Bohr and published by Academic Press. This book was released on 2020-06-21 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: Artificial Intelligence (AI) in Healthcare is more than a comprehensive introduction to artificial intelligence as a tool in the generation and analysis of healthcare data. The book is split into two sections where the first section describes the current healthcare challenges and the rise of AI in this arena. The ten following chapters are written by specialists in each area, covering the whole healthcare ecosystem. First, the AI applications in drug design and drug development are presented followed by its applications in the field of cancer diagnostics, treatment and medical imaging. Subsequently, the application of AI in medical devices and surgery are covered as well as remote patient monitoring. Finally, the book dives into the topics of security, privacy, information sharing, health insurances and legal aspects of AI in healthcare. Highlights different data techniques in healthcare data analysis, including machine learning and data mining Illustrates different applications and challenges across the design, implementation and management of intelligent systems and healthcare data networks Includes applications and case studies across all areas of AI in healthcare data

Communities in Action

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309452961
Total Pages : 583 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Communities in Action by : National Academies of Sciences, Engineering, and Medicine

Download or read book Communities in Action written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-04-27 with total page 583 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.

Participatory Health Through Social Media

Author : Shabbir Syed-Abdul
Publisher : Academic Press
ISBN 13 : 0128095482
Total Pages : 164 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Participatory Health Through Social Media by : Shabbir Syed-Abdul

Download or read book Participatory Health Through Social Media written by Shabbir Syed-Abdul and published by Academic Press. This book was released on 2016-06-10 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participatory Health through Social Media explores how traditional models of healthcare can be delivered differently through social media and online games, and how these technologies are changing the relationship between patients and healthcare professionals, as well as their impact on health behavior change. The book also examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection. Also looks into the opportunities and risks to record and analyze epidemiologically relevant data retrieved from the Internet, social media, sensor data, and other digital sources. The book encompasses topics such as patient empowerment, gamification and social games, and the relationships between social media, health behavior change, and health communication crisis during epidemics. Additionally, the book analyzes the possibilities of big data generated through social media. Authored by IMIA Social Media working group, this book is a valuable resource for healthcare researchers and professionals, as well as clinicians interested in using new media as part of their practice or research. Presents a multidisciplinary point of view providing the readers with a broader perspective Brings the latest case studies and technological advances in the area, supported by an active international community of members who actively work in this area Endorsed by IMIA Social Media workgroup, guaranteeing trustable information from the most relevant experts on the subject Examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection

Unequal Treatment

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 030908265X
Total Pages : 781 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Unequal Treatment by : Institute of Medicine

Download or read book Unequal Treatment written by Institute of Medicine and published by National Academies Press. This book was released on 2009-02-06 with total page 781 pages. Available in PDF, EPUB and Kindle. Book excerpt: Racial and ethnic disparities in health care are known to reflect access to care and other issues that arise from differing socioeconomic conditions. There is, however, increasing evidence that even after such differences are accounted for, race and ethnicity remain significant predictors of the quality of health care received. In Unequal Treatment, a panel of experts documents this evidence and explores how persons of color experience the health care environment. The book examines how disparities in treatment may arise in health care systems and looks at aspects of the clinical encounter that may contribute to such disparities. Patients' and providers' attitudes, expectations, and behavior are analyzed. How to intervene? Unequal Treatment offers recommendations for improvements in medical care financing, allocation of care, availability of language translation, community-based care, and other arenas. The committee highlights the potential of cross-cultural education to improve provider-patient communication and offers a detailed look at how to integrate cross-cultural learning within the health professions. The book concludes with recommendations for data collection and research initiatives. Unequal Treatment will be vitally important to health care policymakers, administrators, providers, educators, and students as well as advocates for people of color.

The Future of the Public's Health in the 21st Century

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309133181
Total Pages : 536 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis The Future of the Public's Health in the 21st Century by : Institute of Medicine

Download or read book The Future of the Public's Health in the 21st Century written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-01 with total page 536 pages. Available in PDF, EPUB and Kindle. Book excerpt: The anthrax incidents following the 9/11 terrorist attacks put the spotlight on the nation's public health agencies, placing it under an unprecedented scrutiny that added new dimensions to the complex issues considered in this report. The Future of the Public's Health in the 21st Century reaffirms the vision of Healthy People 2010, and outlines a systems approach to assuring the nation's health in practice, research, and policy. This approach focuses on joining the unique resources and perspectives of diverse sectors and entities and challenges these groups to work in a concerted, strategic way to promote and protect the public's health. Focusing on diverse partnerships as the framework for public health, the book discusses: The need for a shift from an individual to a population-based approach in practice, research, policy, and community engagement. The status of the governmental public health infrastructure and what needs to be improved, including its interface with the health care delivery system. The roles nongovernment actors, such as academia, business, local communities and the media can play in creating a healthy nation. Providing an accessible analysis, this book will be important to public health policy-makers and practitioners, business and community leaders, health advocates, educators and journalists.

Healthcare and the Effect of Technology: Developments, Challenges and Advancements

Author : Kabene, Stfane M.
Publisher : IGI Global
ISBN 13 : 1615207341
Total Pages : 392 pages
Book Rating : 4.6/5 (152 download)

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Book Synopsis Healthcare and the Effect of Technology: Developments, Challenges and Advancements by : Kabene, Stfane M.

Download or read book Healthcare and the Effect of Technology: Developments, Challenges and Advancements written by Kabene, Stfane M. and published by IGI Global. This book was released on 2010-03-31 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book examines current developments and challenges in the incorporation of ICT in the health system from the vantage point of patients, providers, and researchers. The authors take an objective, realistic view of the shift that will result for patients, providers, and the healthcare industry in general from the increased use of eHealth services"--Provided by publisher.

E-health Communities and Online Self-help Groups

Author : Åsa Smedberg
Publisher :
ISBN 13 : 9781782689539
Total Pages : pages
Book Rating : 4.6/5 (895 download)

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Book Synopsis E-health Communities and Online Self-help Groups by : Åsa Smedberg

Download or read book E-health Communities and Online Self-help Groups written by Åsa Smedberg and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: E-health communities, also called Web-based health communities, have become popular arenas for support and sharing of experience, knowledge and advice among patients and citizens. E-health communities are used on a day-to-day basis by people who help each other cope with different health conditions and learn together about health-related issues and behaviors.

Digital Data Improvement Priorities for Continuous Learning in Health and Health Care

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 030925941X
Total Pages : 58 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Digital Data Improvement Priorities for Continuous Learning in Health and Health Care by : Institute of Medicine

Download or read book Digital Data Improvement Priorities for Continuous Learning in Health and Health Care written by Institute of Medicine and published by National Academies Press. This book was released on 2013-04-26 with total page 58 pages. Available in PDF, EPUB and Kindle. Book excerpt: Digital health data are the lifeblood of a continuous learning health system. A steady flow of reliable data is necessary to coordinate and monitor patient care, analyze and improve systems of care, conduct research to develop new products and approaches, assess the effectiveness of medical interventions, and advance population health. The totality of available health data is a crucial resource that should be considered an invaluable public asset in the pursuit of better care, improved health, and lower health care costs. The ability to collect, share, and use digital health data is rapidly evolving. Increasing adoption of electronic health records (EHRs) is being driven by the implementation of the Health Information Technology for Economic and Clinical Health (HITECH) Act, which pays hospitals and individuals incentives if they can demonstrate that they use basic EHRs in 2011. Only a third had access to the basic features necessary to leverage this information for improvement, such as the ability to view laboratory results, maintain problem lists, or manage prescription ordering. In addition to increased data collection, more organizations are sharing digital health data. Data collected to meet federal reporting requirements or for administrative purposes are becoming more accessible. Efforts such as Health.Data.gov provide access to government datasets for the development of insights and software applications with the goal of improving health. Within the private sector, at least one pharmaceutical company is actively exploring release of some of its clinical trial data for research by others. Digital Data Improvement Priorities for Continuous Learning in Health and Health Care: Workshop Summary summarizes discussions at the March 2012 Institute of Medicine (2012) workshop to identify and characterize the current deficiencies in the reliability, availability, and usability of digital health data and consider strategies, priorities, and responsibilities to address such deficiencies.