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Caring For Youth With Severe Disabilities
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Book Synopsis Caring for Youth with Severe Disabilities by : Tamer Said Oraby Mohammed
Download or read book Caring for Youth with Severe Disabilities written by Tamer Said Oraby Mohammed and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Little is known about parents' Quality of Life (QOL) when their children with disabilities become youth and young adults. This study compared parents' QOL versus child's age and severity of disability conditions. Secondary data analysis of Statistics Canada's General Social Survey Cycle 26 was completed. This study focused on parents who were "caregivers" to their disabled children aged between 0-29 years. The analyses of 193 parents' overall life satisfaction showed significant differences based on their child(ren)'s age (0-10, 11-19, 20-29) and disability severity (mild, moderate, and severe). Parents reported significant low QOL's scores when their children were in the group of 11-19 years old and their disability severity was moderate or severe. The findings highlighted the need for evidence-based family support for families of youth with moderate or severe disabilities.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309447720 Total Pages :115 pages Book Rating :4.3/5 (94 download)
Book Synopsis Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs by : National Academies of Sciences, Engineering, and Medicine
Download or read book Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-10-24 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them. To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309472245 Total Pages :351 pages Book Rating :4.3/5 (94 download)
Book Synopsis Opportunities for Improving Programs and Services for Children with Disabilities by : National Academies of Sciences, Engineering, and Medicine
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Book Synopsis Caring for Children with Special Healthcare Needs and Their Families by : Linda L. Eddy
Download or read book Caring for Children with Special Healthcare Needs and Their Families written by Linda L. Eddy and published by John Wiley & Sons. This book was released on 2013-01-25 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population. More than just caring for the patients, the text stresses the importance of caring for their families as well. The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities. Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end-of-life. Caring for Children with Special Healthcare Needs and Their Families is a must-have book for family and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.
Download or read book Inclusion Works! written by Faye Ong and published by Hippocrene Books. This book was released on 2009 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Teaching Students with Moderate and Severe Disabilities by : Diane M. Browder
Download or read book Teaching Students with Moderate and Severe Disabilities written by Diane M. Browder and published by Guilford Press. This book was released on 2011-07-06 with total page 449 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book has been replaced by Teaching Students with Moderate and Severe Disabilities, Second Edition, 978-1-4625-4238-3.
Book Synopsis Children with Special Needs by : Ulrika Hallberg
Download or read book Children with Special Needs written by Ulrika Hallberg and published by Springer Nature. This book was released on 2023-03-31 with total page 94 pages. Available in PDF, EPUB and Kindle. Book excerpt: There can be a lack of understanding of the vulnerable situation of children with disabilities and their families, even among professional caregivers whose mission is to protect the health and wellbeing of these children. Their respectful treatment should include knowledge, empathy, humanity, and an open and sympathetic dialogue. This book provides an overview of knowledge and literature review of children and adolescents with special care needs that contribute to the respect and understanding of children with disabilities and their families. It also explains possible reasons for different outcomes in research studies and why there is a lack of knowledge in some areas concerning these children. Research on children with disabilities is considerable but often can be difficult to access on many levels, which means it does not always benefit those who need this knowledge. This compact book addresses this by presenting the international research in the field in an understandable way for people who work with children with disabilities and their families. The authors provide a broad picture of the background, reality of life, opportunities for professional help and support, as well as outlook of these children and families. Among the topics covered: The Health and Well-being of Children with Disabilities The Health and Well-being of Relatives Occupation On the Road to Adulthood Children with Special Needs: An Overview of Knowledge on Disability is pertinent reading for students in all areas of health care (including nursing and psychology), social work, sociology, and education aimed at children and young people. The text also would be of interest to those who practice in these areas and/or encounter children with disabilities in their daily work.
Book Synopsis Caring for Children Who Have Severe Neurological Impairment by : Julie M. Hauer
Download or read book Caring for Children Who Have Severe Neurological Impairment written by Julie M. Hauer and published by JHU Press. This book was released on 2013-08-01 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hauer offers hope and practical coping strategies in equal measure.
Book Synopsis SPECIALCARE OUTREACH: INCREASING CHILD CARE OPTIONS FOR CHILDREN WITH SEVERE DISABILITIES. FINAL REPORT... ED436905... U.S. DEPARTMENT OF ED. by : United States. Office of Educational Research and Improvement
Download or read book SPECIALCARE OUTREACH: INCREASING CHILD CARE OPTIONS FOR CHILDREN WITH SEVERE DISABILITIES. FINAL REPORT... ED436905... U.S. DEPARTMENT OF ED. written by United States. Office of Educational Research and Improvement and published by . This book was released on 2001* with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Educating Students with Severe and Multiple Disabilities by : Fred P. Orelove
Download or read book Educating Students with Severe and Multiple Disabilities written by Fred P. Orelove and published by Brookes Publishing Company. This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This fifth edition of the bestselling and highly regarded textbook on educating students with severe and multiple disabilities--newly revised, thoroughly updated, and streamlined for students--is the comprehensive resource for current and future educators and related services personnel
Book Synopsis Neurodevelopmental Disabilities by : Dilip R. Patel
Download or read book Neurodevelopmental Disabilities written by Dilip R. Patel and published by Springer Science & Business Media. This book was released on 2011-04-07 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increasingly more and more children with developmental disabilities survive into adulthood. Pediatricians and other clinicians are called upon to care for an increasing number of children with developmental disabilities in their practice and thus there is a need for a practical guide specifically written for paediatricians and primary care clinicians that addresses major concepts of neurodevelopmental pediatrics. In the United States, the specialty training leading to a conjoint board certification by the American Board of Pediatrics and American Board of Psychiatry and Neurology, requires a total of 6 years of training (2 years of pediatrics, 1 year of neurology, 18 months of child neurology, 18 months of neurodevelopmental disabilities). As of December 2006, in the US, there were 241 pediatricians and 55 child neurologists certified in the subspecialty of Neurodevelopmental Disabilities. Thus most of the children with developmental disabilities are seen by pediatricians and therefore it is important for these pediatricians to be well informed of common issues in the field. The 60,000 or so pediatricians in the United States (and hundreds more in other countries) are the main target audience for a practical book on neurodevelopmental pediatrics.
Book Synopsis Health Care Transition by : Albert C. Hergenroeder
Download or read book Health Care Transition written by Albert C. Hergenroeder and published by Springer. This book was released on 2018-05-03 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
Book Synopsis Transition from School to Work by : Paul Wehman
Download or read book Transition from School to Work written by Paul Wehman and published by Brookes Publishing Company. This book was released on 1987 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Equity and Full Participation for Individuals with Severe Disabilities by : Martin Agran
Download or read book Equity and Full Participation for Individuals with Severe Disabilities written by Martin Agran and published by Brookes Publishing Company. This book was released on 2014 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aligned with the core values and agenda of TASH, this visionary text prepares professionals to strengthen supports and services for people with disabilities across the lifespan.
Book Synopsis Caring for Young Children with Special Needs by : Cindy Croft
Download or read book Caring for Young Children with Special Needs written by Cindy Croft and published by Redleaf Press. This book was released on 2016-12-08 with total page 133 pages. Available in PDF, EPUB and Kindle. Book excerpt: This easy-to-use guide gives you a quick overview on many topics related to working with young children with special needs. Learn about inclusion in early childhood programs and disability law, as well as typical vs. atypical development. The quick guide also covers several specific disabilities/special needs and provides definitions, common characteristics, and practical strategies for adaptation. Cindy Croft is the director of the Center for Inclusive Child Care at Concordia University and on faculty for several university education programs. She has her MA in Education and has worked in the field of early childhood for over twenty years.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309376882 Total Pages :397 pages Book Rating :4.3/5 (93 download)
Book Synopsis Mental Disorders and Disabilities Among Low-Income Children by : National Academies of Sciences, Engineering, and Medicine
Download or read book Mental Disorders and Disabilities Among Low-Income Children written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-10-28 with total page 397 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
