Anonymizing Health Data

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Anonymizing Health Data

Author : Khaled El Emam
Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1449363032
Total Pages : 252 pages
Book Rating : 4.4/5 (493 download)

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Book Synopsis Anonymizing Health Data by : Khaled El Emam

Download or read book Anonymizing Health Data written by Khaled El Emam and published by "O'Reilly Media, Inc.". This book was released on 2013-12-11 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated as of August 2014, this practical book will demonstrate proven methods for anonymizing health data to help your organization share meaningful datasets, without exposing patient identity. Leading experts Khaled El Emam and Luk Arbuckle walk you through a risk-based methodology, using case studies from their efforts to de-identify hundreds of datasets. Clinical data is valuable for research and other types of analytics, but making it anonymous without compromising data quality is tricky. This book demonstrates techniques for handling different data types, based on the authors’ experiences with a maternal-child registry, inpatient discharge abstracts, health insurance claims, electronic medical record databases, and the World Trade Center disaster registry, among others. Understand different methods for working with cross-sectional and longitudinal datasets Assess the risk of adversaries who attempt to re-identify patients in anonymized datasets Reduce the size and complexity of massive datasets without losing key information or jeopardizing privacy Use methods to anonymize unstructured free-form text data Minimize the risks inherent in geospatial data, without omitting critical location-based health information Look at ways to anonymize coding information in health data Learn the challenge of anonymously linking related datasets

The Complete Book of Data Anonymization

Author : Balaji Raghunathan
Publisher : CRC Press
ISBN 13 : 1439877319
Total Pages : 267 pages
Book Rating : 4.4/5 (398 download)

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Book Synopsis The Complete Book of Data Anonymization by : Balaji Raghunathan

Download or read book The Complete Book of Data Anonymization written by Balaji Raghunathan and published by CRC Press. This book was released on 2013-05-21 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Complete Book of Data Anonymization: From Planning to Implementation supplies a 360-degree view of data privacy protection using data anonymization. It examines data anonymization from both a practitioner's and a program sponsor's perspective. Discussing analysis, planning, setup, and governance, it illustrates the entire process of adapting an

Anonymizing Health Data

Author : Khaled El Emam
Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1449363059
Total Pages : 227 pages
Book Rating : 4.4/5 (493 download)

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Book Synopsis Anonymizing Health Data by : Khaled El Emam

Download or read book Anonymizing Health Data written by Khaled El Emam and published by "O'Reilly Media, Inc.". This book was released on 2013-12-11 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Updated as of August 2014, this practical book will demonstrate proven methods for anonymizing health data to help your organization share meaningful datasets, without exposing patient identity. Leading experts Khaled El Emam and Luk Arbuckle walk you through a risk-based methodology, using case studies from their efforts to de-identify hundreds of datasets. Clinical data is valuable for research and other types of analytics, but making it anonymous without compromising data quality is tricky. This book demonstrates techniques for handling different data types, based on the authors’ experiences with a maternal-child registry, inpatient discharge abstracts, health insurance claims, electronic medical record databases, and the World Trade Center disaster registry, among others. Understand different methods for working with cross-sectional and longitudinal datasets Assess the risk of adversaries who attempt to re-identify patients in anonymized datasets Reduce the size and complexity of massive datasets without losing key information or jeopardizing privacy Use methods to anonymize unstructured free-form text data Minimize the risks inherent in geospatial data, without omitting critical location-based health information Look at ways to anonymize coding information in health data Learn the challenge of anonymously linking related datasets

Guide to the De-Identification of Personal Health Information

Author : Khaled El Emam
Publisher : CRC Press
ISBN 13 : 1482218801
Total Pages : 417 pages
Book Rating : 4.4/5 (822 download)

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Book Synopsis Guide to the De-Identification of Personal Health Information by : Khaled El Emam

Download or read book Guide to the De-Identification of Personal Health Information written by Khaled El Emam and published by CRC Press. This book was released on 2013-05-06 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offering compelling practical and legal reasons why de-identification should be one of the main approaches to protecting patients' privacy, the Guide to the De-Identification of Personal Health Information outlines a proven, risk-based methodology for the de-identification of sensitive health information. It situates and contextualizes this risk-ba

Database Anonymization

Author : Josep Domingo-Ferrer
Publisher : Springer Nature
ISBN 13 : 3031023471
Total Pages : 120 pages
Book Rating : 4.0/5 (31 download)

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Book Synopsis Database Anonymization by : Josep Domingo-Ferrer

Download or read book Database Anonymization written by Josep Domingo-Ferrer and published by Springer Nature. This book was released on 2022-05-31 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: The current social and economic context increasingly demands open data to improve scientific research and decision making. However, when published data refer to individual respondents, disclosure risk limitation techniques must be implemented to anonymize the data and guarantee by design the fundamental right to privacy of the subjects the data refer to. Disclosure risk limitation has a long record in the statistical and computer science research communities, who have developed a variety of privacy-preserving solutions for data releases. This Synthesis Lecture provides a comprehensive overview of the fundamentals of privacy in data releases focusing on the computer science perspective. Specifically, we detail the privacy models, anonymization methods, and utility and risk metrics that have been proposed so far in the literature. Besides, as a more advanced topic, we identify and discuss in detail connections between several privacy models (i.e., how to accumulate the privacy guarantees they offer to achieve more robust protection and when such guarantees are equivalent or complementary); we also explore the links between anonymization methods and privacy models (how anonymization methods can be used to enforce privacy models and thereby offer ex ante privacy guarantees). These latter topics are relevant to researchers and advanced practitioners, who will gain a deeper understanding on the available data anonymization solutions and the privacy guarantees they can offer.

Sharing Clinical Trial Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Medical Data Privacy Handbook

Author : Aris Gkoulalas-Divanis
Publisher : Springer
ISBN 13 : 3319236334
Total Pages : 832 pages
Book Rating : 4.3/5 (192 download)

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Book Synopsis Medical Data Privacy Handbook by : Aris Gkoulalas-Divanis

Download or read book Medical Data Privacy Handbook written by Aris Gkoulalas-Divanis and published by Springer. This book was released on 2015-11-26 with total page 832 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook covers Electronic Medical Record (EMR) systems, which enable the storage, management, and sharing of massive amounts of demographic, diagnosis, medication, and genomic information. It presents privacy-preserving methods for medical data, ranging from laboratory test results to doctors’ comments. The reuse of EMR data can greatly benefit medical science and practice, but must be performed in a privacy-preserving way according to data sharing policies and regulations. Written by world-renowned leaders in this field, each chapter offers a survey of a research direction or a solution to problems in established and emerging research areas. The authors explore scenarios and techniques for facilitating the anonymization of different types of medical data, as well as various data mining tasks. Other chapters present methods for emerging data privacy applications and medical text de-identification, including detailed surveys of deployed systems. A part of the book is devoted to legislative and policy issues, reporting on the US and EU privacy legislation and the cost of privacy breaches in the healthcare domain. This reference is intended for professionals, researchers and advanced-level students interested in safeguarding medical data.

Introduction to Privacy-Preserving Data Publishing

Author : Benjamin C.M. Fung
Publisher : CRC Press
ISBN 13 : 1420091506
Total Pages : 374 pages
Book Rating : 4.4/5 (2 download)

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Book Synopsis Introduction to Privacy-Preserving Data Publishing by : Benjamin C.M. Fung

Download or read book Introduction to Privacy-Preserving Data Publishing written by Benjamin C.M. Fung and published by CRC Press. This book was released on 2010-08-02 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gaining access to high-quality data is a vital necessity in knowledge-based decision making. But data in its raw form often contains sensitive information about individuals. Providing solutions to this problem, the methods and tools of privacy-preserving data publishing enable the publication of useful information while protecting data privacy. Int

Bioinformatics and Biomedical Engineering

Author : Ignacio Rojas
Publisher : Springer Nature
ISBN 13 : 3030453855
Total Pages : 843 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis Bioinformatics and Biomedical Engineering by : Ignacio Rojas

Download or read book Bioinformatics and Biomedical Engineering written by Ignacio Rojas and published by Springer Nature. This book was released on 2020-04-30 with total page 843 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume constitutes the proceedings of the 8th International Work-Conference on IWBBIO 2020, held in Granada, Spain, in May 2020. The total of 73papers presented in the proceedings, was carefully reviewed and selected from 241 submissions. The papers are organized in topical sections as follows: Biomarker Identification; Biomedical Engineering; Biomedical Signal Analysis; Bio-Nanotechnology; Computational Approaches for Drug Design and Personalized Medicine; Computational Proteomics and Protein-Protein Interactions; Data Mining from UV/VIS/NIR Imaging and Spectrophotometry; E-Health Technology, Services and Applications; Evolving Towards Digital Twins in Healthcare (EDITH); High Performance in Bioinformatics; High-Throughput Genomics: Bioinformatic Tools and Medical Applications; Machine Learning in Bioinformatics; Medical Image Processing; Simulation and Visualization of Biological Systems.

Health Informatics Meets EHealth

Author : G. Schreier
Publisher : IOS Press
ISBN 13 : 1614998582
Total Pages : 360 pages
Book Rating : 4.6/5 (149 download)

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Book Synopsis Health Informatics Meets EHealth by : G. Schreier

Download or read book Health Informatics Meets EHealth written by G. Schreier and published by IOS Press. This book was released on 2018-05-18 with total page 360 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biomedical engineering and health informatics are closely related to each other, and it is often difficult to tell where one ends and the other begins, but ICT systems in healthcare and biomedical systems and devices are already becoming increasingly interconnected, and share the common entity of data. This is something which is set to become even more prevalent in future, and will complete the chain and flow of information from the sensor, via processing, to the actuator, which may be anyone or anything from a human healthcare professional to a robot. Methods for automating the processing of information, such as signal processing, machine learning, predictive analytics and decision support, are increasingly important for providing actionable information and supporting personalized and preventive healthcare protocols in both biomedical and digital healthcare systems and applications. This book of proceedings presents 50 papers from the 12th eHealth conference, eHealth2018, held in Vienna, Austria, in May 2018. The theme of this year’s conference is Biomedical Meets eHealth – From Sensors to Decisions, and the papers included here cover a wide range of topics from the field of eHealth. The book will be of interest to all those working to design and implement healthcare today.

Research Anthology on Privatizing and Securing Data

Author : Management Association, Information Resources
Publisher : IGI Global
ISBN 13 : 1799889556
Total Pages : 2188 pages
Book Rating : 4.7/5 (998 download)

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Book Synopsis Research Anthology on Privatizing and Securing Data by : Management Association, Information Resources

Download or read book Research Anthology on Privatizing and Securing Data written by Management Association, Information Resources and published by IGI Global. This book was released on 2021-04-23 with total page 2188 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the immense amount of data that is now available online, security concerns have been an issue from the start, and have grown as new technologies are increasingly integrated in data collection, storage, and transmission. Online cyber threats, cyber terrorism, hacking, and other cybercrimes have begun to take advantage of this information that can be easily accessed if not properly handled. New privacy and security measures have been developed to address this cause for concern and have become an essential area of research within the past few years and into the foreseeable future. The ways in which data is secured and privatized should be discussed in terms of the technologies being used, the methods and models for security that have been developed, and the ways in which risks can be detected, analyzed, and mitigated. The Research Anthology on Privatizing and Securing Data reveals the latest tools and technologies for privatizing and securing data across different technologies and industries. It takes a deeper dive into both risk detection and mitigation, including an analysis of cybercrimes and cyber threats, along with a sharper focus on the technologies and methods being actively implemented and utilized to secure data online. Highlighted topics include information governance and privacy, cybersecurity, data protection, challenges in big data, security threats, and more. This book is essential for data analysts, cybersecurity professionals, data scientists, security analysts, IT specialists, practitioners, researchers, academicians, and students interested in the latest trends and technologies for privatizing and securing data.

Anonymization of Electronic Medical Records to Support Clinical Analysis

Author : Aris Gkoulalas-Divanis
Publisher : Springer Science & Business Media
ISBN 13 : 1461456673
Total Pages : 87 pages
Book Rating : 4.4/5 (614 download)

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Book Synopsis Anonymization of Electronic Medical Records to Support Clinical Analysis by : Aris Gkoulalas-Divanis

Download or read book Anonymization of Electronic Medical Records to Support Clinical Analysis written by Aris Gkoulalas-Divanis and published by Springer Science & Business Media. This book was released on 2012-10-13 with total page 87 pages. Available in PDF, EPUB and Kindle. Book excerpt: Anonymization of Electronic Medical Records to Support Clinical Analysis closely examines the privacy threats that may arise from medical data sharing, and surveys the state-of-the-art methods developed to safeguard data against these threats. To motivate the need for computational methods, the book first explores the main challenges facing the privacy-protection of medical data using the existing policies, practices and regulations. Then, it takes an in-depth look at the popular computational privacy-preserving methods that have been developed for demographic, clinical and genomic data sharing, and closely analyzes the privacy principles behind these methods, as well as the optimization and algorithmic strategies that they employ. Finally, through a series of in-depth case studies that highlight data from the US Census as well as the Vanderbilt University Medical Center, the book outlines a new, innovative class of privacy-preserving methods designed to ensure the integrity of transferred medical data for subsequent analysis, such as discovering or validating associations between clinical and genomic information. Anonymization of Electronic Medical Records to Support Clinical Analysis is intended for professionals as a reference guide for safeguarding the privacy and data integrity of sensitive medical records. Academics and other research scientists will also find the book invaluable.

Building an Anonymization Pipeline

Author : Luk Arbuckle
Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1492053384
Total Pages : 186 pages
Book Rating : 4.4/5 (92 download)

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Book Synopsis Building an Anonymization Pipeline by : Luk Arbuckle

Download or read book Building an Anonymization Pipeline written by Luk Arbuckle and published by "O'Reilly Media, Inc.". This book was released on 2020-04-13 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can you use data in a way that protects individual privacy but still provides useful and meaningful analytics? With this practical book, data architects and engineers will learn how to establish and integrate secure, repeatable anonymization processes into their data flows and analytics in a sustainable manner. Luk Arbuckle and Khaled El Emam from Privacy Analytics explore end-to-end solutions for anonymizing device and IoT data, based on collection models and use cases that address real business needs. These examples come from some of the most demanding data environments, such as healthcare, using approaches that have withstood the test of time. Create anonymization solutions diverse enough to cover a spectrum of use cases Match your solutions to the data you use, the people you share it with, and your analysis goals Build anonymization pipelines around various data collection models to cover different business needs Generate an anonymized version of original data or use an analytics platform to generate anonymized outputs Examine the ethical issues around the use of anonymized data

Statistical Disclosure Control

Author : Anco Hundepool
Publisher : John Wiley & Sons
ISBN 13 : 1118348214
Total Pages : 308 pages
Book Rating : 4.1/5 (183 download)

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Book Synopsis Statistical Disclosure Control by : Anco Hundepool

Download or read book Statistical Disclosure Control written by Anco Hundepool and published by John Wiley & Sons. This book was released on 2012-07-05 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: A reference to answer all your statistical confidentiality questions. This handbook provides technical guidance on statistical disclosure control and on how to approach the problem of balancing the need to provide users with statistical outputs and the need to protect the confidentiality of respondents. Statistical disclosure control is combined with other tools such as administrative, legal and IT in order to define a proper data dissemination strategy based on a risk management approach. The key concepts of statistical disclosure control are presented, along with the methodology and software that can be used to apply various methods of statistical disclosure control. Numerous examples and guidelines are also featured to illustrate the topics covered. Statistical Disclosure Control: Presents a combination of both theoretical and practical solutions Introduces all the key concepts and definitions involved with statistical disclosure control. Provides a high level overview of how to approach problems associated with confidentiality. Provides a broad-ranging review of the methods available to control disclosure. Explains the subtleties of group disclosure control. Features examples throughout the book along with case studies demonstrating how particular methods are used. Discusses microdata, magnitude and frequency tabular data, and remote access issues. Written by experts within leading National Statistical Institutes. Official statisticians, academics and market researchers who need to be informed and make decisions on disclosure limitation will benefit from this book.

Privacy-Preserving Data Publishing

Author : Bee-Chung Chen
Publisher : Now Publishers Inc
ISBN 13 : 1601982763
Total Pages : 183 pages
Book Rating : 4.6/5 (19 download)

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Book Synopsis Privacy-Preserving Data Publishing by : Bee-Chung Chen

Download or read book Privacy-Preserving Data Publishing written by Bee-Chung Chen and published by Now Publishers Inc. This book was released on 2009-10-14 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is dedicated to those who have something to hide. It is a book about "privacy preserving data publishing" -- the art of publishing sensitive personal data, collected from a group of individuals, in a form that does not violate their privacy. This problem has numerous and diverse areas of application, including releasing Census data, search logs, medical records, and interactions on a social network. The purpose of this book is to provide a detailed overview of the current state of the art as well as open challenges, focusing particular attention on four key themes: RIGOROUS PRIVACY POLICIES Repeated and highly-publicized attacks on published data have demonstrated that simplistic approaches to data publishing do not work. Significant recent advances have exposed the shortcomings of naive (and not-so-naive) techniques. They have also led to the development of mathematically rigorous definitions of privacy that publishing techniques must satisfy; METRICS FOR DATA UTILITY While it is necessary to enforce stringent privacy policies, it is equally important to ensure that the published version of the data is useful for its intended purpose. The authors provide an overview of diverse approaches to measuring data utility; ENFORCEMENT MECHANISMS This book describes in detail various key data publishing mechanisms that guarantee privacy and utility; EMERGING APPLICATIONS The problem of privacy-preserving data publishing arises in diverse application domains with unique privacy and utility requirements. The authors elaborate on the merits and limitations of existing solutions, based on which we expect to see many advances in years to come.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 396 pages
Book Rating : 4.5/5 (876 download)

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Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Model and Data Engineering

Author : Christian Attiogbé
Publisher : Springer
ISBN 13 : 9783030784270
Total Pages : 321 pages
Book Rating : 4.7/5 (842 download)

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Book Synopsis Model and Data Engineering by : Christian Attiogbé

Download or read book Model and Data Engineering written by Christian Attiogbé and published by Springer. This book was released on 2021-06-09 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the refereed proceedings of the 10th International Conference on Model and Data Engineering, MEDI 2021, held in Tallinn, Estonia, in June 2021. The 16 full papers and 8 short papers presented in this book were carefully reviewed and selected from 47 submissions. Additionally, the volume includes 3 abstracts of invited talks. The papers cover broad research areas on both theoretical, systems and practical aspects. Some papers include mining complex databases, concurrent systems, machine learning, swarm optimization, query processing, semantic web, graph databases, formal methods, model-driven engineering, blockchain, cyber physical systems, IoT applications, and smart systems. Due to the Corona pandemic the conference was held virtually.