The Inheritance

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Author :
Publisher : Simon and Schuster
ISBN 13 : 1451697333
Total Pages : 407 pages
Book Rating : 4.4/5 (516 download)

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Book Synopsis The Inheritance by : Niki Kapsambelis

Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.

The Hidden Victims of Alzheimer's Disease

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Author :
Publisher : NYU Press
ISBN 13 : 081479663X
Total Pages : 231 pages
Book Rating : 4.8/5 (147 download)

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Book Synopsis The Hidden Victims of Alzheimer's Disease by : Steven H. Zarit

Download or read book The Hidden Victims of Alzheimer's Disease written by Steven H. Zarit and published by NYU Press. This book was released on 1985-08 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: An invaluable resource guide for anyone working with persons suffering from Alzheimer's disease, this is the first book to present a step-by-step program to help families cope with the day-to-day problems arising from this disease. Using detailed case examples, the authors offer unique and effective strategies to help the family—and the patient—have enjoyable and more productive lives. "Well written and eminently practical guide for families struggling with the burdens of Alzheimer's disease." —Peter V. Rabins, M.D., John Hopkins University School of Medicine, author of Thirty-Six Hour Day "An outstanding book dealing knowledgeably and sensitively with a painful disease affecting millions of American familes." —Robert N. Butler, M.D., Brookdale Professor of Geriatrics and Adult Development, Mount Sinai School of Medicine, New York

Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)

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Author :
Publisher : Lulu.com
ISBN 13 : 0359588190
Total Pages : 106 pages
Book Rating : 4.3/5 (595 download)

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Book Synopsis Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) by : National Institute on Aging

Download or read book Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD

Six Steps to Managing Alzheimer's Disease and Dementia

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Author :
Publisher : Oxford University Press
ISBN 13 : 0190098147
Total Pages : 353 pages
Book Rating : 4.1/5 (9 download)

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Book Synopsis Six Steps to Managing Alzheimer's Disease and Dementia by : Andrew E. Budson MD

Download or read book Six Steps to Managing Alzheimer's Disease and Dementia written by Andrew E. Budson MD and published by Oxford University Press. This book was released on 2021-08-23 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.

The 36-Hour Day

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Author :
Publisher : JHU Press
ISBN 13 : 1421441705
Total Pages : 361 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis The 36-Hour Day by : Nancy L. Mace

Download or read book The 36-Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.

I Can't Remember

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Publisher : Temple University Press
ISBN 13 : 1592138535
Total Pages : 135 pages
Book Rating : 4.5/5 (921 download)

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Book Synopsis I Can't Remember by : Esther Strauss Smoller

Download or read book I Can't Remember written by Esther Strauss Smoller and published by Temple University Press. This book was released on 2010-06-21 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt: I Can't Remember is an intimate photo essay of four families and their process of coping with Alzheimer's disease -- a process of coming to terms with the practical and emotional consequences of a disease that changes the entire family dynamic. Family members tell their stories of first denying that their loved one cold be suffering from Alzheimer's, then dealing with the changing relationships among family members and the intensifying emotions, as old family troubles are stirred up and new feelings of despair and love appear. Photographs and personal narratives are woven together to show both the unpleasant and the beautiful sides of the struggle for connection between spouses and across generations. Smoller has a gift for capturing people as they interact, whether it's arguing around the kitchen table or dancing cheek to cheek. Each family's story is different, but all four families share common pain and frustration. A highway patrolman who has early onset Alzheimer's describes what it is like to have Alzheimer's. His wife tells a parallel story of life together after hearing the diagnosis. A daughter gives the following account of her mother: "I though that it would be helpful if mother spent time in my home in Colorado. Before this visit, I was in denial, convinced that she suffered from depression and not Alzheimer's disease. ... On the plane trip to Colorado, I was brought into the stark, cold reality that Mom had Alzheimer's. She did not know where she was or where she was going. Upon arrival, she did not recognize my home, although she had visited me numerous times in the past. She tried sleeping in the bathtub the first night." Another daughter relates that she was unaware of the onset of Alzheimer's in her mother, because her mother was such a "wonderful actress." Eventually the memory problems were no longer confined to where things belonged in the kitchen, but extended into driving off at random, driving in circles in a parking lot in the middle of the night or as much as 75 miles away from home. I Can't Remember gives an intimate glimpse into the hearts and minds of caregivers and patients. Supportive social networks are essential for healthy life. This book provides the impetus caregivers need to develop contacts that can provide support. Smoller offers a glimpse of the frustration and losses faced by those who deal with Alzheimer's, as well as the potential to transcend those losses -- even is only for a time -- through love and hope.

Alzheimer's

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Author :
Publisher : Doubleday Books
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Alzheimer's by : James Lindemann Nelson

Download or read book Alzheimer's written by James Lindemann Nelson and published by Doubleday Books. This book was released on 1996 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for a loved one who is terminally ill can be tremendously stressful under any circumstances. If that person has a degenerative and dementing disease such as Alzheimer's, and is unable to participate in decisions regarding his or her care, the stress is that much greater. When it comes to making those difficult moral and ethical decisions which will preserve the dignity and integrity of the patient while also maintaining the caregiver's own selfhood, this is the book that can help. How much should the patient be told? How strongly should he be urged to plan for his own future? Is it ever right to lie to the patient about her condition? When is it right to place your loved one in a nursing home--and not feel guilty about it? How do different family members arrive at agreement among themselves in each of these situations? Authors and bioethicists James and Hilde Lindemann Nelson have written an invaluable step-by-step guide to tackling these and other difficult decisions. Using their extensive research on moral issues in health care, the Nelsons create hypothetical scenarios that demonstrate some of the most common situations caregivers will have to face during every stage of the illness, and show by example how they can make the right choices for themselves, the patient, and the rest of the family. This invaluable information, combined with a state-by-state and city-by-city guide to agencies and support groups offering practical assistance, as well as a list of suggested reading on the subject, make this book unique--and the most complete source of advice available.

Alzheimer's Disease Treatment and Family Stress

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Author :
Publisher : Taylor & Francis
ISBN 13 : 9781560321378
Total Pages : 504 pages
Book Rating : 4.3/5 (213 download)

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Book Synopsis Alzheimer's Disease Treatment and Family Stress by : Enid Light

Download or read book Alzheimer's Disease Treatment and Family Stress written by Enid Light and published by Taylor & Francis. This book was released on 1990 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Emotional Journey of the Alzheimer's Family

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Author :
Publisher : Dartmouth College Press
ISBN 13 : 1611687454
Total Pages : 231 pages
Book Rating : 4.6/5 (116 download)

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Book Synopsis The Emotional Journey of the Alzheimer's Family by : Robert B. Santulli, MD

Download or read book The Emotional Journey of the Alzheimer's Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

Alzheimer's Disease

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Author :
Publisher : Da Capo Lifelong Books
ISBN 13 :
Total Pages : 388 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis Alzheimer's Disease by : Lenore S. Powell

Download or read book Alzheimer's Disease written by Lenore S. Powell and published by Da Capo Lifelong Books. This book was released on 1993-01-20 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: When people suffer from Alzheimer's disease, their family and friends usually must care for them and make decisions on their behalf, tasks that can be emotionally and physically draining. Backed by solid medical information about the specifics of the disease -- from early signs, testing, and diagnosis to treatments and long-term care -- this comprehensive guide will help family and caregivers alike be better prepared for the unique challenges ahead of them. An invaluable resource, Alzheimer's Disease explains how to cope with the many feelings provoked by the disease and provides practical care advice including ways to communicate and to make life safe and comfortable for the Alzheimer's patient. Copyright © Libri GmbH. All rights reserved.

Talking to Alzheimer's

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Author :
Publisher :
ISBN 13 :
Total Pages : 196 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Talking to Alzheimer's by : Claudia Strauss

Download or read book Talking to Alzheimer's written by Claudia Strauss and published by . This book was released on 2001 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Simple ways to connect when you visit with a family member or friend.

The Person with Alzheimer's Disease

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Author :
Publisher : JHU Press
ISBN 13 : 9780801868771
Total Pages : 336 pages
Book Rating : 4.8/5 (687 download)

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Book Synopsis The Person with Alzheimer's Disease by : Phyllis Braudy Harris

Download or read book The Person with Alzheimer's Disease written by Phyllis Braudy Harris and published by JHU Press. This book was released on 2002-06-06 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.

The 36-Hour Day

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Author :
Publisher : JHU Press
ISBN 13 : 1421402793
Total Pages : 380 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis The 36-Hour Day by : Nancy L. Mace

Download or read book The 36-Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2011-10-07 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: Originally published in 1981, The 36-Hour Day was the first book of its kind. Thirty years later, with dozens of other books on the market, it remains the definitive guide for people caring for someone with dementia. Now in a new and updated edition, this best-selling book features thoroughly revised chapters on the causes of dementia, managing the early stages of dementia, the prevention of dementia, and finding appropriate living arrangements for the person who has dementia when home care is no longer an option.

Alzheimer's Disease and the Family

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Author :
Publisher :
ISBN 13 :
Total Pages : 40 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Alzheimer's Disease and the Family by : Joy S. Martyniuk

Download or read book Alzheimer's Disease and the Family written by Joy S. Martyniuk and published by . This book was released on 1990 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Alzheimer's Disease

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Author :
Publisher : Da Capo Press
ISBN 13 : 078674507X
Total Pages : 422 pages
Book Rating : 4.7/5 (867 download)

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Book Synopsis Alzheimer's Disease by : Lenore Powell

Download or read book Alzheimer's Disease written by Lenore Powell and published by Da Capo Press. This book was released on 2009-01-29 with total page 422 pages. Available in PDF, EPUB and Kindle. Book excerpt: When people suffer from Alzheimer's disease, their family and friends usually must care for them and make decisions on their behalf, tasks that can be emotionally and physically draining. Backed by solid medical information about the specifics of the disease-from early signs, testing, and diagnosis to treatments and long-term care-this comprehensive guide will help family and caregivers alike be better prepared for the unique challenges ahead of them. An invaluable resource, Alzheimer's Disease explains how to cope with the many feelings provoked by the disease and provides practical care advice including ways to communicate and to make life safe and comfortable for the Alzheimer's patient.

The Impact of Alzheimer's Disease on the Family

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Author :
Publisher :
ISBN 13 :
Total Pages : 144 pages
Book Rating : 4.:/5 (152 download)

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Book Synopsis The Impact of Alzheimer's Disease on the Family by : Catherine Mary Park

Download or read book The Impact of Alzheimer's Disease on the Family written by Catherine Mary Park and published by . This book was released on 1986 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Loss of Self

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Author :
Publisher : Bantam Doubleday Dell Publishing Group
ISBN 13 :
Total Pages : 560 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis The Loss of Self by : Donna Cohen

Download or read book The Loss of Self written by Donna Cohen and published by Bantam Doubleday Dell Publishing Group. This book was released on 1987 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt: