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Navigating Life with Amyotrophic Lateral Sclerosis

Author : Mark B. Bromberg
Publisher : Oxford University Press
ISBN 13 : 0190241624
Total Pages : 281 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Navigating Life with Amyotrophic Lateral Sclerosis by : Mark B. Bromberg

Download or read book Navigating Life with Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and published by Oxford University Press. This book was released on 2017 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Advanced Life Support Participant's Manual

Author : American Red Cross
Publisher :
ISBN 13 : 9781736744703
Total Pages : pages
Book Rating : 4.7/5 (447 download)

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Book Synopsis Advanced Life Support Participant's Manual by : American Red Cross

Download or read book Advanced Life Support Participant's Manual written by American Red Cross and published by . This book was released on 2021-06-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Palliative Care in Amyotrophic Lateral Sclerosis

Author : David Oliver
Publisher : Oxford University Press, USA
ISBN 13 : 0199686025
Total Pages : 337 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Palliative Care in Amyotrophic Lateral Sclerosis by : David Oliver

Download or read book Palliative Care in Amyotrophic Lateral Sclerosis written by David Oliver and published by Oxford University Press, USA. This book was released on 2014 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides an evidence-based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families, and care in bereavement.

Fast Facts: Diagnosing Amyotrophic Lateral Sclerosis

Author : Martin Turner
Publisher : Karger Medical and Scientific Publishers
ISBN 13 : 1912776111
Total Pages : 103 pages
Book Rating : 4.9/5 (127 download)

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Book Synopsis Fast Facts: Diagnosing Amyotrophic Lateral Sclerosis by : Martin Turner

Download or read book Fast Facts: Diagnosing Amyotrophic Lateral Sclerosis written by Martin Turner and published by Karger Medical and Scientific Publishers. This book was released on 2019-11-26 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of amyotrophic lateral sclerosis (also known as Lou Gehrig's disease or motor neuron disease) is a progressive neurodegenerative disorder that exerts a notorious life-shortening physical toll. Understandably, clinicians are keen to avoid a wrong diagnosis when there are such serious consequences, but any delay in diagnosis can result in unnecessary, and sometimes harmful, interventions, and prevents prompt implementation of much-needed physical and emotional support. Starting from the premise that ALS is not one disease but a syndrome, with a spectrum of upper and lower motor neuron involvement, this highly readable resource examines the causes of diagnostic delay and how to avoid them. With no diagnostic test to confirm the disease, no mandatory investigations and very few plausible 'ALS mimics', the authors take a pragmatic approach to what must always be a clinical diagnosis. With case presentations and teaching points to aid understanding, 'Fast Facts: ALS' will give clinicians the confidence to confirm or exclude a diagnosis of ALS, so that individuals facing this most challenging of conditions can receive rapid multidisciplinary support to maximize the quality of their remaining life. Contents: • Defining the syndrome • Epidemiology and pathophysiology • The first symptoms • Differential diagnosis • Investigations • Emerging diagnostic biomarkers

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And

Download Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And PDF Online Free

Author : Robert Rymore
Publisher : Imb Publishing
ISBN 13 : 9781909151604
Total Pages : 154 pages
Book Rating : 4.1/5 (516 download)

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Book Synopsis Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And by : Robert Rymore

Download or read book Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And written by Robert Rymore and published by Imb Publishing. This book was released on 2013-08-01 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.

Alice Neel: Uptown

Author : Hilton Als
Publisher : David Zwirner Books
ISBN 13 : 1941701604
Total Pages : 145 pages
Book Rating : 4.9/5 (417 download)

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Book Synopsis Alice Neel: Uptown by : Hilton Als

Download or read book Alice Neel: Uptown written by Hilton Als and published by David Zwirner Books. This book was released on 2017-05-23 with total page 145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Known for her portraits of family, friends, writers, poets, artists, students, singers, salesmen, activists, and more, Alice Neel created forthright, intimate, and, at times, humorous paintings that quietly engaged with political and social issues. In Alice Neel, Uptown, writer and curator Hilton Als brings together a body of paintings and works on paper of African-Americans, Latinos, Asians, and other people of color for the first time. Highlighting the innate diversity of Neel’s approach, the selection looks at those whose portraits are often left out of the art-historical canon and how this extraordinary painter captured them; “what fascinated her was the breadth of humanity that she encountered,” Als writes. The publication, which opens with a foreword by Jeremy Lewison, advisor to The Estate of Alice Neel, explores Neel’s interest in the diversity of uptown New York and the variety of people amongst whom she lived. This group of portraits includes well-known figures such as playwright, actress, and author Alice Childress; the sociologist Horace R. Cayton, Jr.; the community activist Mercedes Arroyo; and the widely published academic Harold Cruse; alongside more anonymous individuals of a nurse, a ballet dancer, a taxi driver, a businessman, and a local kid who ran errands for Neel. In short and illuminating texts on specific works written in his characteristic narrative style, Als writes about the history of each sitter and offers insights into Neel and her work, while adding his own perspective. A contemporary and personal approach to the artist’s oeuvre, Als’s project is “an attempt to honor not only what Neel saw, but the generosity of her seeing.” This catalogue is published on the occasion of the 2017 exhibitions of Neel’s paintings and drawings at David Zwirner, New York, and Victoria Miro, London.

Kickin' ALS

Author : Carrey Dewey
Publisher :
ISBN 13 : 9781941953877
Total Pages : pages
Book Rating : 4.9/5 (538 download)

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Book Synopsis Kickin' ALS by : Carrey Dewey

Download or read book Kickin' ALS written by Carrey Dewey and published by . This book was released on 2019-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.

Amyotrophic Lateral Sclerosis

Author : Hiroshi Mitsumoto
Publisher : Contemporary Neurology
ISBN 13 :
Total Pages : 520 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Hiroshi Mitsumoto

Download or read book Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto and published by Contemporary Neurology. This book was released on 1998 with total page 520 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.

ALS Saved My Life... Until It Didn't

Author : Dr. Jenni Kleinman Berebitsky
Publisher :
ISBN 13 : 9780692066690
Total Pages : 278 pages
Book Rating : 4.0/5 (666 download)

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Book Synopsis ALS Saved My Life... Until It Didn't by : Dr. Jenni Kleinman Berebitsky

Download or read book ALS Saved My Life... Until It Didn't written by Dr. Jenni Kleinman Berebitsky and published by . This book was released on 2018-03-18 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.

The Women

Author : Hilton Als
Publisher : Macmillan + ORM
ISBN 13 : 1466820748
Total Pages : 139 pages
Book Rating : 4.4/5 (668 download)

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Book Synopsis The Women by : Hilton Als

Download or read book The Women written by Hilton Als and published by Macmillan + ORM. This book was released on 1998-01-31 with total page 139 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Notable Book Daring and fiercely original, The Women is at once a memoir, a psychological study, a sociopolitical manifesto, and an incisive adventure in literary criticism. It is conceived as a series of portraits analyzing the role that sexual and racial identity played in the lives and work of the writer's subjects: his mother, a self-described "Negress," who would not be defined by the limitations of race and gender; the mother of Malcolm X, whose mixed-race background and eventual descent into madness contributed to her son's misogyny and racism; brilliant, Harvard-educated Dorothy Dean, who rarely identified with other blacks or women, but deeply empathized with white gay men; and the late Owen Dodson, a poet and dramatist who was female-identified and who played an important role in the author's own social and intellectual formation. Hilton Als submits both racial and sexual stereotypes to his inimitable scrutiny with relentless humor and sympathy. The results are exhilarating. The Women is that rarest of books: a memorable work of self-investigation that creates a form of all its own.

White Girls

Author : Hilton Als
Publisher : Penguin
ISBN 13 : 052550656X
Total Pages : 304 pages
Book Rating : 4.5/5 (255 download)

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Book Synopsis White Girls by : Hilton Als

Download or read book White Girls written by Hilton Als and published by Penguin. This book was released on 2019-07-09 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book will change you." --Chicago Tribune White Girls is about, among other things, blackness, queerness, movies, Brooklyn, love (and the loss of love), AIDS, fashion, Basquiat, Capote, philosophy, porn, Eminem, Louise Brooks, and Michael Jackson. Freewheeling and dazzling, tender and true, it is one of the most daring and provocative books of recent years, an invaluable guide to the culture of our time.

Amyotrophic Lateral Sclerosis

Author : Dr. Robert G. Miller, MD
Publisher : Demos Medical Publishing
ISBN 13 : 1932603069
Total Pages : 258 pages
Book Rating : 4.9/5 (326 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Dr. Robert G. Miller, MD

Download or read book Amyotrophic Lateral Sclerosis written by Dr. Robert G. Miller, MD and published by Demos Medical Publishing. This book was released on 2004-10 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: Annotation Chapters cover nutrition and swallowing; speech, communication, and computer access; mobility; breathing and sleeping; end-of-life care; and much more, including insurance issues and practical tips. Chapters from leading ALS organizations offer useful lists of- support services- publications- websites and other resources.

The Ice Bucket Challenge

Author : Casey Sherman
Publisher : University Press of New England
ISBN 13 : 1512601594
Total Pages : 186 pages
Book Rating : 4.5/5 (126 download)

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Book Synopsis The Ice Bucket Challenge by : Casey Sherman

Download or read book The Ice Bucket Challenge written by Casey Sherman and published by University Press of New England. This book was released on 2017-09-05 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.

The Tale of an ALS Reversal

Author : McFinn Lovere
Publisher :
ISBN 13 :
Total Pages : 182 pages
Book Rating : 4.7/5 (742 download)

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Book Synopsis The Tale of an ALS Reversal by : McFinn Lovere

Download or read book The Tale of an ALS Reversal written by McFinn Lovere and published by . This book was released on 2021-12-03 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: The time has come to tell my ALS reversal story. I have been silent long enough. In 2006 I was diagnosed with ALS and given 18 months to get my affairs in order. My physical condition deteriorated rapidly, until wheelchair-bound, I was only able to move my head and two fingers. My story is one of heartache, despair, the wish to end my life, and the Supernatural Gift of recovery. This book chronicles my journey and recovery as a rare ALS reversal. I feel I am in a unique position to offer solace and the understanding that only comes from enduring this disease. My Reversal taught me to never give up HOPE

ALS Case Studies in Emergency Care

Author : Edward T. Dickinson
Publisher : Prentice Hall
ISBN 13 :
Total Pages : 308 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis ALS Case Studies in Emergency Care by : Edward T. Dickinson

Download or read book ALS Case Studies in Emergency Care written by Edward T. Dickinson and published by Prentice Hall. This book was released on 2004 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by leading practitioners in the medical field, these case studies offer in-depth explanations of scenarios encountered in the prehospital environment. A consistent format helps readers understand the discussions, questions, and the resolution for each case; allowing them to gain exposure to the many different situations that will arise on the job. KEY TOPICS: 51 cases are organized into 3 topic areas: Medical Emergencies, Trauma and Surgical Emergencies, and Special Situations. MARKET: An excellent reference and interesting reading for emergency medical technicians and paramedics.

ALS

Author : Eliot H. Dunsky
Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781534988668
Total Pages : 0 pages
Book Rating : 4.9/5 (886 download)

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Book Synopsis ALS by : Eliot H. Dunsky

Download or read book ALS written by Eliot H. Dunsky and published by Createspace Independent Publishing Platform. This book was released on 2016-11-04 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.

Until I Say Good-Bye

Author : Bret Witter
Publisher : Hachette UK
ISBN 13 : 1444762214
Total Pages : 346 pages
Book Rating : 4.4/5 (447 download)

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Book Synopsis Until I Say Good-Bye by : Bret Witter

Download or read book Until I Say Good-Bye written by Bret Witter and published by Hachette UK. This book was released on 2013-03-14 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.